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  1. Mij

    Scottish MP Carol Monaghan and her work for people with ME/CFS

    There were several doctors in Canada that had their lives threatened b/c they promoted vaccines on social media. Some perps showed up at their homes.
  2. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    What? "At the centre they are tested for signs of long-term organ damage and taught how to overcome the key symptoms - shortness of breath, fatigue, low mood and "brain fog"
  3. Mij

    Covid-19 vaccines and vaccinations

    Third dose data in solid organ transplants, now from France. Antibody response up from 40% (2 doses) to 68% (3rd dose) And Ab levels go up in all. https://www.nejm.org/doi/full/10.1056/NEJMc2108861
  4. Mij

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    People want to feel like they're in control, and pushing themselves gives them a feeling of accomplishment. I pushed myself in the earlier years of ME, but it didn't turn out so well.
  5. Mij

    Needs and Experiences of Children and Adolescents with Pediatric Multiple Sclerosis and Their Caregivers: A Systematic Review, 2021, Ghai et al

    It's a very small percentage, and even though children may experience frequent attacks (possibly more than typically seen in adults), studies have shown that children also seem to have very good recovery that is often more rapid than adults
  6. Mij

    Guest Blog MEA: The Shame

    Wow, I talked about ME for 7 years straight to anyone who would listen, and then realized no one was interested so I stopped.
  7. Mij

    Article in Guardian: I rested my way to recovery from ‘long-haul Covid’. I urge others to do the same | Fiona Lowenstein

    I felt pretty much recovered after 9 months of PVFS and returned to work. My equilibrium and sleep was the first sign that something was wrong after only 10 days. I wasn't fatigued or sick, it felt like a switch had turned off.
  8. Mij

    Article in Guardian: I rested my way to recovery from ‘long-haul Covid’. I urge others to do the same | Fiona Lowenstein

    And there's also remitting-relapsing episodes that occurs with PVFS and ME. I rested very well for the first 7 years and reached a level of 80-90% improvement. I don't believe resting for another 5 years would have made any difference in my situation. When we start exerting ourselves...
  9. Mij

    Article in Guardian: I rested my way to recovery from ‘long-haul Covid’. I urge others to do the same | Fiona Lowenstein

    My experience with having ME for 30 years and interacting with pwME, is that some of us develop comorbidities over time that will determine the progression of the illness, spontaneous recovery isn't dependent on resting early in my experience, but does prevent PEM from becoming worse. Some...
  10. Mij

    Covid-19 vaccines and vaccinations

    I forgot to mention that the mag shots were injected in my butt :laugh: Either way, I always thought it would hit bone .
  11. Mij

    Covid-19 vaccines and vaccinations

    I used 38mm needles when I injected IM with magnesium sulfate and I'm slim. I think they should use this size for all IM injections.
  12. Mij

    My PEM seems to have changed its character from last year

    I wasn't surprised to learn recently that POTS is now being referred to as 'deconditioning' too :emoji_rolling_eyes: The Dysautonomia folks posted a recent tweet highlighting an Olympic swimmer dx with POTS as not having 'deconditioning'.
  13. Mij

    Response to Women's Health Survey from Improve Thyroid Treatment group

    My sister gets dizziness from time to time from Hashimoto and has to take a day off work. She gets fatigue but can still work, but high impact aerobic exercise is hard for her. She experiences what she describes as 'brain fog', which is not at all close to what I experience with...
  14. Mij

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    His behaviour is insulting and irresponsible, and does not reflect the experiences of pwME by making comments such as 'disarming'' ME/CFS. His dismissiveness towards pwME when they tried to explain their experiences says a lot about him.
  15. Mij

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    This article was going well until . . . PG is making his 'mark', as you say n=1 everywhere. It's truly baffling. https://www.discovermagazine.com/health/what-we-know-and-dont-know-about-long-covid What bothers me more is that CFS (or ME) is linked to his name.
  16. Mij

    Scientific American: Could Mitochondria Be the Key to a Healthy Brain?, 2021, Kwon

    https://intracellresearchgroup.com/chlamydia-pneumoniae/ I watched a program 20 years ago where a Canadian doctor said they found chlamydia pneumoniae in Alzheimer's brains and that "it should not be there'. He also mentioned that Alzheimer's should be treated the same as heart disease.
  17. Mij

    Covid-19 vaccination experiences

    @Tia I haven't had any jabs yet, but here in Canada (NACI) are recommending that people who received first dose AZ get the an mRNA (Pfizer or Moderna) for their second dose.
  18. Mij

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    @Wyva On a positive note (?), sending you to different specialist can help r/o other illnesses? I was sent to many specialists and had tests and blood work done before being diagnoses.
  19. Mij

    Comparing Idiopathic Chronic Fatigue and ME/CFS: Response to 2-day CPET, two papers males & females, 2021, Van Campen & Visser

    My blood lactate levels were 'normal' the next day (and second day) when I was in PEM after exercise (running).
  20. Mij

    World Physiotherapy: Briefing paper 9: Long COVID, physical activity and exercise

    I have seen over a dozen doctors and specialists in my 30 years with ME, not one has ever advised or suggested I see a physio therapist. I was told to rest.
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