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  1. Snow Leopard

    Exploring the validity of the chalder fatigue scale in chronic fatigue syndrome - 1998 Morriss et al

    How yer doing? (visual analogue) is more relevant and understandable than the Chalder Fatigue Scale. ;)
  2. Snow Leopard

    US - Free Webinar: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) & the Pediatric Patient

    This is what came to mind when you said that: (sorry for offtopic)
  3. Snow Leopard

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Numbness of the face is not a symptom of ME or CFS.
  4. Snow Leopard

    US - Free Webinar: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) & the Pediatric Patient

  5. Snow Leopard

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    I don't really see the big deal, I mean if stress is part of the pathology and the drug works, then fantastic. But we also need to emphasise the reverse, namely if the drug doesn't work, then we need to abandon hypotheses that involve the corticotropin-releasing factor (and glucocorticoid...
  6. Snow Leopard

    Assessing chronic fatigue syndrome: Self-reported physical functioning and correlations with physical testing - 2019 Eyskens,Illegems,De Nil et al

    It's an interesting test, but motivation is still a factor, so it's relevance for testing the outcome of GET is not clear cut.
  7. Snow Leopard

    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    Because patients don't know anything about methodological biases. We're just here to be experimented on!
  8. Snow Leopard

    The right to record medical consultations - UK and other countries

    What are the laws in Australia. I know it is not legal to record private conversations in South Australia without the permission of both parties. Kind of nonsense that it's called a wiretap law when no actual phones are involved though...
  9. Snow Leopard

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    Or it just represents questionnaire answering bias because the study was not blinded....
  10. Snow Leopard

    Quantifying the Association Between Psychotherapy Content and Clinical Outcomes Using Deep Learning (2019) Ewbank et al.

    Quantifying the circular reasoning Between Psychotherapy Content and Clinical Outcomes Using Deep Learning. ;)
  11. Snow Leopard

    Open Analysis of Post-exertional Malaise Using a Two-day CPET in People With ME/CFS

    Eight 2 day CPET studies published so far, perhaps this will be the 9th? :woot:
  12. Snow Leopard

    Problematic training courses - please add

    PEM is not DOMS, it's frustrating when doctors don't listen to patients and then insist on their own (wrong) ideas.
  13. Snow Leopard

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Maybe you should go on holiday?
  14. Snow Leopard

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    For two and a half months? Sounds like my perfect job!
  15. Snow Leopard

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Going on 2 and a half months, I think it is clear the authors and the editor (who presumably would insist on the changes suggested by her predecessor) do not agree.
  16. Snow Leopard

    Respiratory and muscular response to acute non-metabolic fatigue during ramp incremental cycling, 2019, Pogliaghi et al

    This is available now BTW.
  17. Snow Leopard

    The Canadian Chronic Pain Task force report

    Oh, me too! The sad part is, resilience in our society is not really determined by innate traits, but rather social support.
  18. Snow Leopard

    Will an app a day, keep the doctor away? A critical look at BPS based phone apps.

    WTF?
  19. Snow Leopard

    Survey of activity pacing across healthcare professionals informs a new activity pacing framework for chronic pain/fatigue, 2019, Antcliff et al

    It's notable that none of the references to "boom-bust" or "overactivity–underactivity cycling" involve CFS patients. The reference to "Effects of activity pacing in patients with chronic conditions associated with fatigue complaints: A meta‐analysis" only mentions a narative review of Exercise...
  20. Snow Leopard

    "Body Reprogramming: Patient guide for recovery using the Hyland model"

    Explanation by analogy. It is a hypothesis, nothing more.
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