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  1. Arnie Pye

    My thyroid/adrenal problems

    You may find this post on another forum of interest with respect to osteoporosis and thyroid levels : https://healthunlocked.com/thyroiduk/posts/132045680/straining-at-a-camel-and-producing-a-gnat
  2. Arnie Pye

    Faulty testing leads to children taken from parents

    I watched the entire film, and I found it really shocking. Surely, any kind of testing needs to be tested itself for accuracy on a regular basis e.g. every 6 months or every year. People's whole lives depend on it. So, if a particular test is done on hair at Lab One, it should also be compared...
  3. Arnie Pye

    Trial By Error: My Brief Encounter with Professor Crawley

    I remember my husband telling me years ago that him and his British colleagues used to wind up an American colleague at work. They would tell him that they would do something "presently". To a Brit, of course, that means at some indefinite time in the future. But to an American, apparently...
  4. Arnie Pye

    Public Liothyronine (T3) UK looking like some good news

    That's true. But they could have avoided probably 5 or more years of heavy costs, and stopped torturing (or never started torturing) so many thyroid patients if they'd paid attention to patients' warnings. It's too late now for most people who were prescribed it though. Very few patients still...
  5. Arnie Pye

    Public Liothyronine (T3) UK looking like some good news

    I saw this news earlier today. But I doubt it will make much difference to patients. NHS England is in the process of banning T3. Most, if not all, CCGs have already banned it anyway. Concordia is going bankrupt, so the NHS won't be able to get its money back. I imagine the profits they...
  6. Arnie Pye

    Does anybody else walk as though they're drunk?

    @BeautifulDay I have to take my husband with me to doctor appointments too. It makes me so angry that it is required. In my case it makes little or no difference to the medical treatment I get (or don't get), but it does at least keep them polite.
  7. Arnie Pye

    Chinese robot becomes world's first machine to pass medical exam [looks like PR from manufacturer... but still!]

    Sorry I should have got that one, but my mind went off in a rather odd direction!
  8. Arnie Pye

    Massachussetts Congressional Delegation made statement at Boston showing of Unrest film

    This post refers to the post above The original post in this thread has a link to an article in Ms.magazine.com. It didn't work for me. I found a reference to Unrest on that site here : http://msmagazine.com/blog/2017/11/07/a-woman-who-dared-chronic-fatigue-syndrome/
  9. Arnie Pye

    Does anybody else walk as though they're drunk?

    I had this problem. I've managed to reduce it a huge amount with two things : 1) I increased my vitamin B12 level, even though I already had levels which were high in range according to a serum B12 test. I keep my levels very high - and I have no idea whether this is a good idea or a bad idea...
  10. Arnie Pye

    ScienMag: Usual antidepressants may not work in patients with chronic illness

    I agree. But I've had doctors telling me most sincerely and with a very earnest expression on their faces that if I'm depressed because I'm ill then taking anti-depressants will fix the underlying illness as well as the depression. The utterly bizarre back-to-front logic behind that would be...
  11. Arnie Pye

    ScienMag: Usual antidepressants may not work in patients with chronic illness

    They've done the same in recent years for dementia diagnosis, although I don't think it lasted for very long : http://www.pulsetoday.co.uk/clinical/more-clinical-areas/neurology/gps-to-be-paid-150-to-diagnose-and-treat-dementia/20033565.article With reference to my earlier posts, I should...
  12. Arnie Pye

    ScienMag: Usual antidepressants may not work in patients with chronic illness

    @Wonko Doctors don't get paid multiple times for the same depression diagnosis, as far as I know. It is new diagnoses that get them points, not prescribing for an existing diagnosis. And there is a limit to how many points they can claim for. But then I also think that GP surgeries have a fixed...
  13. Arnie Pye

    ScienMag: Usual antidepressants may not work in patients with chronic illness

    What is in it for UK doctors you ask? £1712 per new diagnosis of depression. This is worked out as follows : The number of QOF (Quality and Outcomes Framework) points they get for each new diagnosis of depression is shown in this link under the heading of Depression ...
  14. Arnie Pye

    What blood tests would you get?

    Has he had all the basics looked at? Minerals, vitamins, looking for anaemia of various kinds, full blood count, liver function, kidney function, cortisol & DHEA levels, sex hormones, thyroid hormones (and I don't just mean TSH), thyroid antibodies, H. Pylori, parasites, gut dysbiosis. Edit : Typo
  15. Arnie Pye

    Exercise-induced changes in cerebrospinal fluid miRNAs in Gulf War Illness, Chronic Fatigue Syndrome and sedentary control subjects, 2017, Baraniuk

    Chronic fatigue syndrome: Changes in brain chemistry found https://www.medicalnewstoday.com/articles/320051.php Doing a search for "Chronic Fatigue Syndrome" on the above website https://www.medicalnewstoday.com/ returns 100 results. It may be of interest, but I'm not up to the task of...
  16. Arnie Pye

    B12/Folic Acid and D3/K2 Supplementation

    I've never injected B12 but I do supplement with high dose B12 orally, alternating between methylcobalamin and adenosylcobalamin. I found that various things got worse when I first started supplementing - my persistent eczema, my already severe mouth ulcers, and instead of having one or two...
  17. Arnie Pye

    Can bacterial infections last for several decades?

    I actually think that in many cases women doctors try to "out-nasty" the men, if you know what I mean. It's a bit like female politicians being tougher than men because they can't afford to be seen to be "soft".
  18. Arnie Pye

    Vitamin D status in chronic fatigue syndrome/myalgic encephalomyelitis: a cohort study from the North-West of England

    That might explain why a very young child in the UK died of rickets recently : https://www.shropshirestar.com/news/local-hubs/telford/2017/11/07/vitamin-d-is-a-silent-killer---rickets-caused-telford-baby-noahs-death/
  19. Arnie Pye

    Opinion on "ME/CFS Service", UK

    From the quote in Cheshire's post https://www.s4me.info/index.php?threads/opinion-on-me-cfs-service-uk.925/ : I expected to be able to have access to things that some people in the ME community have found helpful such as B12 injections People with Pernicious Anaemia (an inability to absorb...
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