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  1. Arnie Pye

    Chronic fatigue tests being sold online

    Unless I just couldn't see it, it wasn't clear how they were actually testing anything. Blood tests? Urine tests? And what are they actually testing for? The £15.99 price tells me this is just a way to waste £15.99.
  2. Arnie Pye

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    I'm in the UK. If I open the link in a new private window I don't have to pay.
  3. Arnie Pye

    Guardian - Mental health services in crisis are abandoning patients to meet targets May 2019

    @dave30th This thread may be of interest to you if you plan on writing any articles on IAPT.
  4. Arnie Pye

    A Waste of 1,000 Research Papers

    And when it is advantageous for a powerful group of people - e.g. governments, the obscenely wealthy, big business - for science NOT to change there are plenty of scientists who can be bought to achieve that end and delay progress for decades.
  5. Arnie Pye

    Thyroid hormones treatment for subclinical hypothyroidism: a clinical practice guideline (2019) G E Bekkering et. al

    The absurd and utterly sadistic thing about this suggestion that TSH must be > 20 before treating is that the mode (most common value) for TSH for healthy women is around 1.25 i.e. 1/16th of the level at which treatment might be granted in future. One problem with hypothyroidism is that...
  6. Arnie Pye

    Thyroid hormones treatment for subclinical hypothyroidism: a clinical practice guideline (2019) G E Bekkering et. al

    Not yet. But I've no doubt it will be implemented here in the not too distant future. To save money for national healthcare organisations, I suspect. It is also useful for pharma companies because all the symptoms of hypothyroidism can be treated one symptom at a time. It won't make the...
  7. Arnie Pye

    Thyroid hormones treatment for subclinical hypothyroidism: a clinical practice guideline (2019) G E Bekkering et. al

    I think you should pray that the Canadian medical authorities don't pick up this new set of guidelines. They are sadistic in the extreme. I just wonder how many thousands or millions of patients (who are mostly women) are going to have their thyroid medication taken off them as a result. You...
  8. Arnie Pye

    Building an evidence base for management of severe ME (including sleep management)

    There is this website : https://www.patientslikeme.com/ Apart from knowing it exists I don't know anything else about it. It does have a section on "Myalgic encephalomyelitis/chronic fatigue syndrome". https://www.patientslikeme.com/conditions/cfs There is also a forum for people with...
  9. Arnie Pye

    Building an evidence base for management of severe ME (including sleep management)

    I don't know anything about severe ME. I particularly don't know how much people with the condition eat, whether they are able to eat, whether they have feeding tubes, what goes through the feeding tubes, or what they eat normally. But assuming that some people with severe ME do eat regularly is...
  10. Arnie Pye

    Article: The alarming hijacking of the BioPsychoSocial model

    It depends on your age whether she could prescribe or not. Melatonin in the UK is only prescribed for adults aged 55 and over. https://bnf.nice.org.uk/drug/melatonin.html I have absolutely no idea what the reasoning is behind this age-based rule. Despite the restrictions on prescribed...
  11. Arnie Pye

    In This Doctor’s Office, a Physical Exam Like No Other (NY Times 8 May 2019) - Commentry by Henrik Vogt

    Are there any sources of printed journalism that aren't, these days?
  12. Arnie Pye

    Memory problems

    Yes I have. I had a severe GI bleed which went on and on and on (for several years)... I suspect I ended up with very low blood volume and various vitamin and mineral deficiencies. I improved with high dose B vitamins and I also took prescription strength iron supplements for a couple of years...
  13. Arnie Pye

    Memory problems

    Deficiencies of vitamin B1 (thiamine) and vitamin B12? They can both cause severe memory impairment. Statins? These can cause global transient amnesia. I've no doubt dozens of drugs can cause memory issues. Check the Patient Information Leaflet for any drugs or supplements you take. It is...
  14. Arnie Pye

    Supplements and activity designed to improve circulation - an experiment.

    Do you know which of your supplements has had this effect?
  15. Arnie Pye

    Discussing acceptance and commitment therapy in ME/CFS.

    I don't know if it is just me, but Acceptance and Commitment Therapy sounds disturbingly like "Accept the Lord into your heart, give your life to Him, and your pain will be taken away." In other words it sounds like religious brainwashing.
  16. Arnie Pye

    Use of antidepressants for/with ME/CFS?

    Anecdotal info : I developed tachycardia when I went on amitriptyline for neuropathic pain. According to the Patient Information Leaflet it is a known side effect. My HR went up to 150 but my BP wasn't affected and was normal. I was put on a low dose of beta blockers (bisoprolol) to slow my HR...
  17. Arnie Pye

    frontiers in Pediatrics: Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome by Boneva, Unger et al 2019

    Hysterectomies are very big business,at least in the US. According to this link : https://www.hersfoundation.org/facts/ When they refer to castration in the above quote they are referring to the removal of ovaries, not the removal of testicles. I should also point out that the website I just...
  18. Arnie Pye

    frontiers in Pediatrics: Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome by Boneva, Unger et al 2019

    Is this a warning shot across the bows of women with endometriosis that their condition is going to be "disappeared" (even further than it already is) under the umbrella of "CFS"? And that women with severe period pains are going to be told they have faulty illness beliefs and they just need CBT...
  19. Arnie Pye

    Prevalence of post-concussion-like symptoms in the general population in Italy, The Netherlands and the United Kingdom, 2019, Voormolen et al

    Doesn't every study these days have to include a mention of symptoms that are potentially of interest in mental health? These are the gateway symptoms that allow doctors to ignore everything else the patient complains of and say that the patient is mentally ill and needs CBT and then should be...
  20. Arnie Pye

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Ah, that is brilliant! Thanks for the link. :)
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