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Thank you @Binkie4. I'm interested to see if their program takes a biomedical approach. It seemed like it might in the tweet. If they have appropriate info, I'm hoping to pass it along. Thanks very much!

@NelliePledge, how does one not familiar with Twitter find out how to contact these physios? Or, is that not possible except via Twitter, as that's the only contact info available? Thank you in advance for your reply.

It is however, sadly not unusual for harms to not be reported, nor required, in other areas of medicine, I believe. Or if they are officially required, it may be understood that this is not a request or regulation with any force behind it. For example the birth control product Essure (sp?) that...

Yes, @Barry, the downsides of medicines and treatments are often provided to patients. One instance where they are not is when a practitioner wishes to gloss over less favourable methods, outcomes etc. It is the norm to carefully provide the downsides of treatments. These clinics' practise of...

@Andy, what a way to run health care! Mediocre accountability at best. Looks like a government gravy train. It would be interesting to see what is reported, and a cost analysis of these clinics. Given the fact we know GET/CBT may cause harm, and the low recovery rate of 5 percent, the cost for...

Further to reporting harms: practitioners may deny the harm, and double down on this. Reporting harms to officials may get nowhere, and may worsen the situation for the patient. Patient safety mechanisms in health care systems may not be effective for patients. It is not surprising that no harms...

Does the NHS request/require these clinics report harms? If not, this seems to indicate the NHS does not view pwME as needing protection, as other patients do. If the NHS does require reporting of harms by these clinics, then the fact zero are reported is very suspicious, and laughable in a...

Thank you to all authors of this important study. What a task to interpret answers! I wonder what these clinics report to funding bodies - perhaps something like "All good here - everyone improved/recovered and happy." Obviously, the clinics are told GET/CBT are not harmful, and indeed are...

My unilateral tinnitus started in early March of this year. I have not had it before. I've had ME for 34 years. Thank you @mariovitali for your research.

Glad to see this interview, especially in light of the current BPS propoganda in NZ. Perhaps a subtle message in the write up about the interview that Whitney Dafoe suffers from a "debilitating form of the disease". IMHO, Whitney suffers from a very severe form of the disease, but that does...

@chrisb, do you mean with broader use of this drug, it became increasingly ineffective? Rather like some antibiotics then. Others can provide a more science based answer, but the movie "Awakening" indicates levodopa was used for these patients. If researchers have wondered since the 70s...

Interesting news. These findings may also lead the way to discoveries about how the micrbiome may effect other drug treatments. It is encouraging that the micrbiome has seemed to be gaining more research attention.

Thank you @dave30th. The journal having this "under consideration" for a year is a pathetic avoidance measure. It's clearly been put on ignore. Thanks for your excellent assistance!

@Sean, I think the Australian guidelines are right on with the illness gains bit. Not to criticize you, not at all, but where the guidelines say: " In the absence of evidence of malingering" - how does one prove malingering? One way would be by hiring a PI to sneak around and film people. And...

A physician told me that my walking about 30 minutes per day (which I try to do as often as I can) is a lot more than a lot of people do. If the deconditioning theory held, others who do way less activity than me should have ME, and I shouldn't!

Article about Freud and his cocaine habit: http://thechart.blogs.cnn.com/2011/07/22/sigmund-freuds-cocaine-problem/ ETA: This is a bit commercial - on CNN, but several of the sites about Dr. Freud include commercials...hmmm.....

If my recall is correct, Freud was a cocaine addict. What a strange world we live in where long-standing harmful psych theories may have been built on faulty thinking - someone under the influence of mind altering drugs.

Well, yes, @Wonko, I thought about that. But, I wouldn't call death a lifestyle. Though it is a choice in some circumstances. I'm trying to say of course that the so-called "gains" for pwME, pwMS etc. are crap to non-existent compared to a normal healthy life. How dare these people who are...

These researchers note pwMS do better with the ECM program - whatever - if they perceive "fewer disease benefits". I hope people with MS who read this study feel insulted, because it is insulting to all with diseases. There is still this idea disease is a lifestyle choice. How do these...

Youtube link to The Autism Enigma. UK, Canadian and US researchers interviewed re gut bugs and their research. I hope that many researchers who are working on the human microbiome from different view points are collaborating: Not sure how to just show the link, as the program kicks right in...