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Regarding the handling of PVFS for ICD-11: As well as considering (but rejecting) requesting that PVFS is assigned a separate code for ICD-11 (and we would have needed to provide a rationale, a Definition/description and also proposed a chapter and parent class for PVFS) we also gave...

From the ICD-11 Beta Content Model 4.1.1 Synonyms Definition: Alternative names for the same entity, possibly in multiple languages. (e.g. Coronary Infarction is a synonym for Myocardial Infarction) Rationale: 1. To indicate similar terms that are commonly used for the same entity 2. To...

Inara, what would your preference be for ICD-11, in the context of DIMDI's current ICD-10-GM structure for these terms? http://www.dimdi.de/static/de/klass...inefassungen/htmlgm2018/block-g90-g99.htm#G93 Release for 2018: G93.3 Chronisches Müdigkeitssyndrom [Chronic fatigue syndrome]...

It's not clear to me whose preferences you are referring to - agencies' preferences or to patients' preferences? If you mean agencies, the preference of NHS and other agencies is to use CFS/ME or Chronic fatigue syndrome (and in some cases, "chronic fatigue"). SNOMED CT lists CFS as "Preferred"...

Hi Inara, WHO/ICD Revision has issued several statements that there is no proposal and no intention to relocate CFS, ME under the ICD-11 Mental, behavioural or neurodevelopmental disorders chapter. In our full submission, you will find our rationale for not suggesting a change of chapter at...

OK, I have to go now and tackle the pile of ironing from hell. I will contact the person with whom I was working on the drafting of a potential FOI re unsupported claims made in the Hanlon 2013 article and ask whether they would be OK with me considering taking this forward without them. I...

Jane has still not clarified why the dates she requested were for between September 2010 to January 2017 and not from March 2010.

Given that I have a history of submitting only polite, formally worded FOIs, maintain websites on which I publish evidenced based reports and avoid making claims I cannot support with evidence, it would be interesting to establish whether I am on the alleged list of 50 to 80 "extremists". And...

OK, sorry, misunderstood your post.

https://www.theguardian.com/uk/2011/apr/11/domestic-extremist-police-databases https://netpol.org/campaigns/dont-be-on-a-database/subject-access-requests-an-introduction/

OK. Re post #54 In a Hanlon thread, on another forum, I had posted links for submitting a Subject Access Request to the relevant police department who deal with Domestic Extremism... if I have the time, I will revisit that post and copy the links here.

"But given the nature and scale of the threat, it is unsurprising that a set of the most worrying names exists- and it is at the disposal of the authorities." Which authorities? And who maintains the list and where and by what means is that data stored and who is making it available to "the...

I will give consideration to submitting a request as to whether or not I am on the list. Why would the police disclose a list of names to a journalist and would that breach data protection? But note, Hanlon does not clarify that the alleged list he was allegedly shown actually came from the Met.

More unsupported statements from the Hanlon 2013 article: "...Few people will speak on the record about the extent of the threat to the ME researchers. There is, I am told, a specialised unit at the Metropolitan Police dedicated to monitoring the threat, but no one at Scotland Yard will speak...

I did consider putting in a request at the time, since I had submitted several FOIs and appealed an FOI decision in early to mid 2010 and also have a website that collated SMILE Trial information, statements of concern, charity statements etc.

I recall posting the links and info for doing this "in another place" in one of the 2013 Hanlon article threads.

Jane Colby has yet to give a straight answer to my Q.

In relation to the Hanlon feature article: This account by Angela Kennedy (who had been approached by Hanlon before Christmas 2012) was written up before the Sunday Times article published in May 2013. PDF format or scroll down page for text version...

I agree - an orchestrated campaign, and I consider that dreadful Sunday Times feature by the late Michael Hanlon was part of that orchestrated campaign. Michael Hanlon died in February 2016.

Sean has quoted: "We discussed whether somebody at the top of one of the leading charities might be behind much of it, relying on others with a lower profile to take the abusive actions." You cannot bring a case for defamation against a group (other than certain protected groups or if the...