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  1. Dx Revision Watch

    Forward ME Group – Bodily Stress Syndrome

    Although the last annual update of ICD-10 (apart from correction of errors) will be in 2019, ICD-10 will continue to be used while member states prepare and transition to ICD-11 at their own pace and according to their country's requirements. This will be a patchy and prolonged implementation...
  2. Dx Revision Watch

    Forward ME Group – Bodily Stress Syndrome

    For the core edition of ICD-11: the initial release is scheduled for June 2018 (likely on June 20). The proposed category to replace the ICD-10 Somatoform disorders for the core ICD-11 is "Bodily distress disorder (BDD)". This has been adapted from the DSM-5's Somatic symptom disorder, and SSD...
  3. Dx Revision Watch

    Forward ME Group – Bodily Stress Syndrome

    At this juncture, you might wish to know that SNOMED International accepted a formal request drafted by me for Forward-ME for the addition of new Parent: SCTID: 118940003: Disorder of nervous system to SCTID: 52702003: Chronic fatigue syndrome following the retirement of the Multisystem...
  4. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    I am sorry, but I am not going to tip toe on eggshells around certain people. I consider it was ill advised of Jen to be urging people to ignore, ignore, ignore Esther Crawley. I fail to see why expressing that opinion should be considered not "nice". I can't do "nice". If I consider...
  5. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Exactly, and a few days ago she was actively encouraging folk to ignore Crawley. I was not alone in having concerns about this. I do hope this forum is not going to be a place where selected high profile advocates are exempt from criticism. If it is - then it's not a place where I am going to...
  6. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Whatever her view is now, I don't consider Crawley should be ignored. And I don't consider I should be discouraged from voicing that opinion.
  7. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    It is a fact that a few days ago she was posting urging folk to ignore, ignore, ignore, Crawley. If Jen has had a change of heart since then, fair enough. But no-one is above criticism.
  8. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    I haven't looked, but if they have removed selected Tweets perhaps hoping to limit comments? I do not agree with Jen Brea that Crawley should be ignored.
  9. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    That holds true also for the 2007 Gresham College lecture anonymous threatening phone call debacle. An anonymous phone call could have come from any source - from a member of a group unconnected with ME or from a mischief maker (the lecture was not about ME) and the protest outside was...
  10. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Anyway, as I've said in the other thread, it's a pity that whoever submitted the FOIs did not include the 6 month period following the release of the Bath hospital's press release. I daresay some aren't aware that Sir Peter Spencer, CEO of Bristol based, Action for M.E., at the time of the...
  11. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Posted in another thread, on this forum, but in case some haven't seen this SMC piece already: http://www.sciencemediacentre.org/wp-content/uploads/2012/10/SMC-Views-from-the-front-line-essays-on-the-SMC.pdf PDF 5.27 MB SMC Science Media Centre October 2, 2012 views from the front line –...
  12. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    The journalist was Michael Hanlon. Hanlon died in February 2016: http://www.telegraph.co.uk/news/obituaries/12159832/Michael-Hanlon-science-writer-obituary.html
  13. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    The FOI requests being circulated by Jane Colby covered the period September 2010 to January 2017. The SMILE Trial pilot issued the press release on March 02, 2010, from which date there were mounting concerns: FOIs were being submitted by individuals and by the MEA; two orgs were issuing...
  14. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    https://www.dropbox.com/s/lc9kmqbxcsuiilg/Esther Crawley inaguaral compressed.mp3?dl=0 Not listened to this yet, but it's reported that she said: "What's funny about this is the e-mail said 'I'm going to cut your balls off'..." in her inaugural lecture on February 24. Source...
  15. Dx Revision Watch

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    ME Association needs to very publicly pull out of CMRC, now. Enough is enough. What more will it take for Charles Shepherd to accept that the MEA's continued support of the CMRC is enabling.
  16. Dx Revision Watch

    Tymes Trust - No reported harassment of staff at Bristol University

    Of course we all know that's no ordinary walking stick that ladycatlover is clutching. Were you frisked before entering the HoC for hidden compartments...poisoned tips and the like...
  17. Dx Revision Watch

    Tymes Trust - No reported harassment of staff at Bristol University

    Support4RS website has been off line for some months. Some pages are available on Wayback Machine https://web.archive.org/web/20160616185952/http://www.support4rs.com/ https://web.archive.org/web/20160911151746/http://www.support4rs.com/about-us/ "...Working with a diverse global...
  18. Dx Revision Watch

    Tymes Trust - No reported harassment of staff at Bristol University

    Jane Colby has now responded that she did not submit the FOIs, herself:
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