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A "community" which needs to extend to clinicians, researchers, research institutes and labs. The WPI had been very quick to offer an expensive, non FDA approved test for XMRV, via its subsidiary lab, which probably served to increase patient interest in XMRV and patient confidence in a (at that...

I note there is no mention in the President's October 2019 Letter of the September 2018 ICD-10-CM Coordination and Maintenance Committee Meeting and IACFS/ME/Lily Chu's support of the proposal for inclusion of the SEID term within ICD-10-CM...

You're welcome. I only discovered this, myself, a couple of weeks ago. I wish they would stop making changes to Twitter, the changes in the summer now make it very difficult to follow threads.

If you click on the post, it then displays (at least for me) the Translate Tweet link, which if clicked, will provide a Google translation. But I agree, I preferred the old system where the link for a translation displayed in one's feed, without the need to click on the post.

This.

If a Wiki isn't evidence based and all statements contained within a topic text referenced with "reliable sources" what purpose and whose interests does it serve?* The concerns here were extensively covered in two earlier threads...

https://en.wikipedia.org/wiki/Civil_Courage_Prize

Mmm? https://www.ncbi.nlm.nih.gov/pubmed/29609859 J Clin Neurosci. 2018 Jun;52:1-4. doi: 10.1016/j.jocn.2018.03.024. Epub 2018 Mar 30. Cognitive behavioral therapies and multiple sclerosis fatigue: A review of literature. Chalah MA1, Ayache SS2. Author information 1 EA 4391, Excitabilité...

MEA replies (click to unroll full response from MEA): Dx Revision Watch replies:

This thread? https://www.s4me.info/threads/denmark-interview-with-per-fink-in-dagens-medicin.11218/ Denmark: Interview with Per Fink in Dagens Medicin

Compare with the EAPM's Alison Creed Award in memory of Alison Creed for life time achievement in the field of Psychosomatic Medicine/Consultation Liaison Psychiatry. (Alison Creed is the late wife of Prof emeritus Frances Creed.)...

http://pure.au.dk/portal/en/JAKOB.STARUP.LINDE@STUDMED.AU.DK Jakob Starup Linde, Department of Clinical Medicine - The Department of Endocrinology and Diabetes, Aarhus University https://pure.au.dk/portal/en/persons/stig-uggerhoej-andersen(dbcd376b-110b-489a-8f6d-85dd2268277d).html Stig...

Google Translation of: https://t.co/WRibwbbClu www.jydskmedicinskselskab.org Jydsk Medical Society awards Prize for Civil Courage to Per Fink Authors: Jakob Starup Linde, Stig Andersen, Signe Engkjær Christensen, Jens Frederik Dahlerup, Peter Vestergaard Jydsk Medical Society (JMS) awards...

Moved post From the Sussex ME/CFS Society website archives (from 2016): (My emphasis) https://measussex.org.uk/medical-conference-2016/ ME TREATMENT & RESEARCH CONFERENCE 2016 Nearly 150 of us spent a pleasant afternoon at the Brighthelm Centre in Brighton on October 6th where excellent...

I'll stand corrected, but I think Colin Barton's Sussex ME/CFS Society (a local group registered as a charity with the Charity Commission) was co-opted by BACME right back when BACME first launched and the group has actively promoted BACME since its launch.

Colin Barton's Sussex ME Society still lists Professor Esther Crawley as a Medical Advisor: https://measussex.org.uk/about-us/medical-advisors/

Note that I cannot find any Summaries of MEA Board of Trustees meetings published after 2013. It might be worth enquiring where these might be found on the website or if the previous policy of posting summaries of meetings has been since been changed and why. [Edited to add: I've enquired (via...

Extracts from ME Association's governing document (its Mem & Arts): http://www.meassociation.org.uk/wp-content/uploads/Articles-of-Association-of-Myalgic-Encephalopathy-Association.pdf Directors’ general authority 6. Subject to the articles, the directors are responsible for the management...

The ME Association's current office holders: https://www.meassociation.org.uk/about-the-mea/patrons-trustees/ ME Association Board of Trustees Chairman: Neil Riley Vice-Chairman: Rick Osman Hon Treasurer: Ewan Dale Trustees: Martine Ainsworth-Wells, Dr Charles Shepherd, Nicki Strong Associate...