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  1. Arnie Pye

    Ethnic minority patients yearn for warmth from health care professionals, research finds

    I assume that any doctor who is unexpectedly nice to me is just good at acting, if I have already been scowled at by receptionists and/or secretaries and/or nurses before I met the doctor himself or herself.
  2. Arnie Pye

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    I usually reject the idea of going to A&E if the problem I have is invisible, and I just keep my fingers crossed that it won't turn out that I have cancer, or am suffering a heart attack, or a stroke.
  3. Arnie Pye

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Has Alan Carson ever been known to complain about groups discussing FND, ME, or Long Covid which were 100% psychiatric/psychological/mental health orientated? Edit : Just wanted to say that this post was written with tongue firmly in cheek.
  4. Arnie Pye

    Protocol Feasibility randomised controlled trial of online group Acceptance and Commitment Therapy for Functional Cognitive Disorder (ACT4FCD) 2023 Poole et al

    So, is that implying that patients with dementia in one of its many forms [Edit: for example] actually have "Functional Cognitive Disorder" and could have better memories if only they tried harder? And "Acceptance and Commitment Therapy"? Always sounds to me like the therapist must be telling...
  5. Arnie Pye

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Yes, but I think from the BPS point of view, patients are lying about their fatigue health because they are lazy, drug-seeking, attention-seeking hypochondriacs. A lot of doctors have similar points of view about women talking about their pelvic pain and their periods. Edit : Changed the word...
  6. Arnie Pye

    Long Covid in the media and social media 2023

    It seems likely to me that the best treatment for Long Covid is not to get Covid at all or to treat Covid when people have it. I won't go into "don't get Covid at all". There are no treatments for acute Covid (for the general public not needing hospitalisation) that I'm aware of, but if there...
  7. Arnie Pye

    Twist of fate A physician-scientist has probed Parkinson’s disease for more than 30 years. Now, he has it

    At least this man can be sure about whether he is getting the best possible treatment available. The average person on the street can't say that about any serious illness.
  8. Arnie Pye

    BBC article: Are Iranian schoolgirls being poisoned by toxic gas?, 2023 (quotes Wessely)

    And nothing will improve in medicine for chronic conditions either. More and more of the chronic stuff is treated as psychosomatic now because it's cheap.
  9. Arnie Pye

    Functional Neurological Disorder (FND) - articles, social media and discussion

    An Editorial. Published in : The American Journal of Psychiatry Title : Issues for DSM-5: Conversion Disorder Published Online:1 Jun 2010 https://doi.org/10.1176/appi.ajp.2010.09101440 Authors : Jon Stone, M.B., Ch.B, M.R.C.P., Ph.D., W. Curt LaFrance, Jr., M.D., M.P.H., James L. Levenson, M.D...
  10. Arnie Pye

    UK: Doctors will be encouraged to issue fewer sick notes

    One thing I've always wondered about is why the number of places for students at medical schools is so restricted in the UK, and as far as I can tell has always been kept low. When the number of doctors is too small why ration the number of student places? I've always assumed that the UK...
  11. Arnie Pye

    Evaluation of Brain-Body Health in Individuals With Common Neuropsychiatric Disorders, 2023, Mosley et al

    I used to be very depressed (with good reason). Every physical ailment I saw doctors about was blamed on my depression, unless what I was complaining about was something that was actually visible. This means that some really serious conditions were ignored, sometimes for years, or misinterpreted...
  12. Arnie Pye

    How to set up a functional neurological disorder education group 2023 Stanton, Edwards et al

    Where does the stigma come from? Isn't it usually coming from the medical professionals who can't diagnose the patients' problems and therefore think the patients are lying or exaggerating or mentally ill? So why give the course to patients? It should be given to the medics (Edit: Who also need...
  13. Arnie Pye

    Long Covid in the media and social media 2023

    Your link sounds interesting but is only available to subscribers. There may be ways around this but my usual solutions for this aren't working.
  14. Arnie Pye

    No moderating impact of a medically unexplained etiology on the relationship between psychological profile and chronic pain, 2018, McNaughton et al

    Are they suggesting that knowing the source of one's pain decreases that pain? But not knowing the source increases it? I'm not convinced. I find the wording of this abstract confusing. Supposing that someone knew what caused their pain, it should seem obvious to even the meanest...
  15. Arnie Pye

    ME researcher Jonas Bergquist - interviews, talks

    I've been diagnosed with dysfunctional breathing - this was at least 15 years ago. I was hyperventilating and didn't know how to overcome it. I think it was triggered by being iron deficient/anaemic and hence breathless. I found the exercises I was taught very helpful. But they had no effect...
  16. Arnie Pye

    ME researcher Jonas Bergquist - interviews, talks

    How many antivirals are there in existence and use at the moment? They certainly don't seem to be commonly used in the UK. I've never been prescribed one in my life (that I am aware of), and I'm damn sure that I've had a fair number of viruses. So what are they currently used for?
  17. Arnie Pye

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Is it possible that patients are being pushed out and ignored?
  18. Arnie Pye

    High body temperature

    This might be of interest. A Tangled Threesome: Circadian Rhythm, Body Temperature Variations, and the Immune System There are lots more papers listed on this link, and you can restrict the age of the papers returned by the search...
  19. Arnie Pye

    skin rashes, itchy skin

    I'm not going to say anything about your condition itself, but if you could get a friend, family member, or carer to look for possible answers with this website : https://dermnetnz.org/ I'd say it is the best dermatology website on the web.
  20. Arnie Pye

    Covid-19 vaccines and vaccinations

    One of my cousins suffered a blood clot in the heart that killed her after receiving the AZ vaccine. I don't know her age at death exactly but I'd guess somewhere in her mid/late 50s, and she wasn't unhealthy.
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