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"relapse can be common if you get back too quickly and push hard" I felt fully recovered after nine months of full time resting and had a relapse when I went back to doing normal things, like going back to work, cooking and short walks.

A friend was a given a Pfizer (4th) the other day and was told they normally give you the same vaccine that you didn't have any reaction to previously. To be honest, I think they just give you a random story b/c they don't know either.

Progressive encephalomyelitis with rigidity and myoclonus (PERM) is a rare neurological disease of unknown etiology, and most patients with PERM are positive for anti-glycine receptor (GlyR) antibody. In this case study, we report a clinical case of a varicella-zoster virus-infected patient...

Merged thread Researchers said the stigma around the virus adds more stress to people already dealing with the complications of an enduring illness, can threaten relationships and make it harder for a patient to heal...

We used CFS and ME interchangeably. So now I'm not sure. When CFS was beginning to make it's appearance as psychological, everyone avoided saying CFS like the plague.

Back in the 90s, in Canada, it was known as ME before CFS. I'm pretty sure of this.

It could also possibly cause death with or w/o ME.

"Chronic fatigue syndrome (CFS), previously known as myalgic encephalomyelitis . . . " We're going back wards.

"Researchers believe this phenomenon is similar to how some people develop long Covid or chronic fatigue syndrome (also known as myalgic encephalomyelitis, or ME/CFS), which are illnesses that can develop after an acute infection. “It can be serious for a small percentage of people if they push...

I saw an M.E specialist in 1992 and he treated pain and insomnia. I'm wondering what treatments she felt would have helped her earlier in the illness to 'prevent' her from becoming worse? I agree that doctors need to be educated on pacing to prevent future harm. I'm not sure if she's...

The only issue I have with MAID is that persons with disabilities (including mental illness) and Veterans are being offered this option as a way to end their life b/c of the governments neglect to provide adequate care and financial supports.

Abstract Background Dysregulation of gut microbiota-associated tryptophan metabolism has been observed in patients with multiple sclerosis. However, defining direct mechanistic links between this apparent metabolic rewiring and individual constituents of the gut microbiota remains challenging...

A common misconception is that we do not need to focus on LC because most people get well over time. Turns out that this is not true. A new meta-analysis shows that symptoms on average decrease by 50% during the first month but then stabilize. Highlights 1. What is already known about this...

Voice changes can also occur in thyroid conditions.

Abstract An enhanced NADH/NAD+ ratio, termed reductive stress, is associated with many diseases. However, whether a downstream sensing pathway exists to mediate pathogenic outcomes remains unclear. Here, we generate a soluble pyridine nucleotide transhydrogenase from Escherichia coli (EcSTH)...

I think that this type of scan would give you better results in determining disability, more so than CPET? There is no harm done with this sort of test if you can get access to them. https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/brain-perfusion-scan

Very tricky slope with M.E. I can barely climb stairs since menopause.