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  1. Mij

    Covid-19 vaccines and vaccinations

    I got my 5th booster yesterday but it wasn't an updated version, it was the same one from Pfizer that I got last December. The nurses had no information on the one jab flu/covid combo for this fall.
  2. Mij

    Post COVID Migraine in a Six Day Cycle

    @boolybooly did you experience migraines before getting Covid? Do you have aura with your migraines? I'm wondering if you're experiencing "Covid headaches". Could be something totally different.
  3. Mij

    Menopause and ME - what's your experience?

    The hot flashes and night sweats after 7 years are the least of my issues with menopause. When I think things are finally calming down, everything comes back even worse. I hate the racing heart and not being able to shut my brain down. I'm thankful I can go out walking in the evenings...
  4. Mij

    Orthostatic chronotropic incompetence in patients with myalgic encephalomyelitis/chronic fatigue syndrome ME/CFS, 2023, van Campen et al.

    I don't think so. The M.E specialist I saw who co-authored the Canadian criteria diagnosed me with 'atypical' M.E. I had a sudden viral infectious onset, but in the early years I didn't have OI, insomnia, cognitive issues or pain. There was no definition for PEM back then and was never...
  5. Mij

    Long Covid in the media and social media 2023

    I was able to read the article in Canada.
  6. Mij

    USA: The RECOVER Initiative - Long Covid research

    Lets expose skin cancer patients to more sun to see if they develop immunity to the sun to find treatments.
  7. Mij

    Cardiovascular involvement in Epstein–Barr virus infection, 2023, Xinying Chen et al

    Treatment The treatment and management of cardiovascular involvement associated with EBV infection remain challenging. According to the existing literature, CALs are more common in CAEBV and EBV-HLH, while myocarditis occurs more often in AEBV. As mentioned previously, EBV-related cardiovascular...
  8. Mij

    Cardiovascular involvement in Epstein–Barr virus infection, 2023, Xinying Chen et al

    Cardiovascular involvement is an uncommon but severe complication of Epstein–Barr virus (EBV) infection caused by direct damage and immune injury. Recently, it has drawn increasing attention due to its dismal prognosis. It can manifest in various ways, including coronary artery dilation (CAD)...
  9. Mij

    Long Covid in the media and social media 2023

    On 19 May 2023, the US Department of Health and Human Services (HHS) advised, “Repeat COVID infections increase your risk for both hospitalization and Long COVID.” https://johnsnowproject.org/primers/us-hhs-advises-on-risk-of-covid-19-reinfection/
  10. Mij

    Long Covid in the media and social media 2023

    I think it might depend on what class of antidepressants? My understanding is that some are neuroprotective.
  11. Mij

    Long Covid in the media and social media 2023

    Teen who thought she was suffering from LC diagnosed with dementia aged 19. https://metro.co.uk/2023/05/19/teen-who-thought-she-had-long-covid-was-diagnosed-with-dementia-at-19-18812571/
  12. Mij

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    From the link: "Study suggests that ME/CFS patients maybe dealing with low levels of pathogens" Ron Davis" "We feel as though we are constantly fighting a virus, but we are not".
  13. Mij

    Influence of exercise on quantity and deformability of immune cells in multiple sclerosis, 2023, Undine Proschmann et al

    Objective: The study aimed to investigate the effect of exercise on immune cell count and cell mechanical properties in people with multiple sclerosis (pwMS) on different disease-modifying treatments (DMT) vs. healthy controls (HCs). Methods: A cohort of 16 HCs and 45 pwMS, including patients...
  14. Mij

    Magnesium

    I posted this chart earlier concerning testing results through Exa test 4 weeks before and after applying magnesium oil and foot soaks. This is the magnesium oil I use: https://www.ancient-minerals.com/transdermal-magnesium/ The chart in the link above indicates a drop in calcium which is...
  15. Mij

    Magnesium

    @Sasha You might find his experience interesting. He had his mg levels tested through EXA test which measures mg levels in the cell and not RBC. He shares his results before and after taking mg supplements based on his low mg status. He also lists the supplements he took to bring his...
  16. Mij

    Immunoglobulin A as a key immunological molecular signature of post-COVID-19 conditions, 2023, Graziele Fonseca de Sousa et al

    Abstract COVID-19 has infected humans worldwide, causing millions of deaths or prolonged symptoms in survivors. The transient or persistent symptoms after SARS-CoV-2 infection have been defined as post-COVID-19 conditions (PCC). We conducted a study of 151 Brazilian PCC patients to analyze...
  17. Mij

    Cross-reactive EBNA1 immunity targets alpha-crystallin B and is associated with multiple sclerosis, 2023, OLIVIA G. THOMAS et al

    Abstract Multiple sclerosis (MS) is an inflammatory disease of the central nervous system, for which and Epstein-Barr virus (EBV) infection is a likely prerequisite. Due to the homology between Epstein-Barr nuclear antigen 1 (EBNA1) and alpha-crystallin B (CRYAB), we examined antibody reactivity...
  18. Mij

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    Primary progressive M.E might be distinct from other M.E subtypes which has been shown to be the case in MS. https://academic.oup.com/brain/article/146/5/1979/7024973?login=false
  19. Mij

    Covid-19 vaccines and vaccinations

    The interesting thing when the nurse called yesterday to book my home visit is that they still didn't understand what M.E was and kept asking me to spell it. They assume it's FM and are careful not to cause pain when injecting. I don't have pain.
  20. Mij

    Covid-19 vaccines and vaccinations

    Booked my 5th vaccine for next week. It's an updated version.
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