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  1. J

    MEAction 2021 MECFS researchers video with R Davis,Prusty

    He is not saying don't publish your research. He is saying the effort should be on finding cures not generating publications. Modern academia emphasizes publishing whether or not the article/research is important. If the researcher is overly concerned with generating publications for tenure...
  2. J

    MEAction 2021 MECFS researchers video with R Davis,Prusty

  3. J

    Aripiprazole - Abilify

    RD talks about Abilify here...sounds like they are onto something. is this video posted somewhere else?
  4. J

    Aripiprazole - Abilify

    Sorry it didn’t last....
  5. J

    Human Leukocyte Antigen alleles associated with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Fluge, Mella et al 2020

    Yeah just saw that. Dr. Mignot identified genetic factors predisposing to human narcolepsy, such as human leukocyte antigenHLA DQB1*06:02 and other genes[8] and isolated the gene causing the methylopathy Autosomal Dominant Cerebelar Ataxia, Deafness and Narcolepsy (ADCA-DN), DNMT1.[9]
  6. J

    BPS attempts at psychologizing Long Covid

    Moved from https://www.s4me.info/threads/fraudlisting-com-a-project-to-keep-track-of-quack-treatments-for-me.20408/ @rvallee Apparently there is a really effective treatment for Canadians! From comment section for this article...
  7. J

    Open Medicine Foundation (OMF)

    This link works.
  8. J

    Open Medicine Foundation (OMF)

    The open house is really long (3 hours)....lot of info...hopefully they can make a summary. Or maybe someone from here with minimal neuroinflamation could take a stab.....
  9. J

    Open Medicine Foundation (OMF)

    $1 million is great. Another $200 million or so would be even better.
  10. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    There’s an overlap because they are the same thing!
  11. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://www.washingtonpost.com/sports/2021/04/19/athletes-long-haul-covid-justin-foster/ Slowed and sidelined, some athletes struggle to return from long-haul covid
  12. J

    Whitney Dafoe Updates

    It’s amazing how (intellectually) productive a lot of the severe MECFS patients are. 25 page article by Whitney—another guy wrote a book that was published. I am not severe, but I could not write a book or long article, barely less read one.
  13. J

    Patent: Method for the treatment of CFS using an inhibitory or cytotoxic agent against plasma cells, 2021, Fluge, Mella

    I think this point might be important....the responders might have been patients with the 2 HLA risk alleles--what about the rest of us??
  14. J

    Patent: Method for the treatment of CFS using an inhibitory or cytotoxic agent against plasma cells, 2021, Fluge, Mella

    I thought you said it doesn't really reduce non-malignant plasma cells......
  15. J

    Transcranial magnetic stimulation - brain stimulation

    https://www.healthrising.org/blog/2021/04/22/chronic-fatigue-brain-stimulation-clinical-trial/ Novel Chronic Fatigue Syndrome (ME/CFS) Brain Stimulation Clinical Trial Begins
  16. J

    Digital ME conference in Stryn, Norway April 13-14th 2021

    Thanks—Did he say anything about cyclophosphamide/further trials?
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