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  1. J

    Dysregulation of brain and choroid plexus cell types in severe COVID-19, Yang et al., 2021, Nature

    oops also posted below now. Not very cheerful about the results of this study.
  2. J

    Dysregulation of brain and choroid plexus cell types in severe COVID-19, Yang et al., 2021, Nature

    https://www.nature.com/articles/s41586-021-03710-0 Posted by @rvallee in COVID thread but deserves its own thread. Published in Nature Abstract Though SARS-CoV-2 primarily targets the respiratory system, patients and survivors can suffer neurological symptoms1–3. Yet, an unbiased...
  3. J

    Article in Vice: The Medical System Should Have Been Prepared for Long COVID

    @alanlevinovitz going after Bret Weinstein on Twitter today. BW is one of the heroes of the “intellectual dark web” and BW was spouting-off some anti-vaccine/non-science based/contrarian nonsense re Covid. Glad that AL is doing this.
  4. J

    Topiramate (Topomax)/Phenytoin (Dilantin)

    Has anyone had any experience with either of these 2 epilepsy drugs? There are some persistent anecdotal reports that these are helpful for MECFS symptoms. This old survey showed that patients perceived that topiramate was one of the most effective drugs that people had taken...
  5. J

    The COVID Long Haulers: Facing the Cognitive and Physical Consequences, June 22, 2021

    Bump...this is on now.....Koroshetz says long Covid was "unanticipated".....
  6. J

    The COVID Long Haulers: Facing the Cognitive and Physical Consequences, June 22, 2021

    And I got a nice reply...... __________________________________________________ Thanks for this -- appreciate it. Liz Elizabeth Cooney Reporter She/Her Twitter: @cooney_liz Mobile: (617) 752-1491 STAT Reporting from the frontiers of health and medicine Try STAT+ today
  7. J

    The COVID Long Haulers: Facing the Cognitive and Physical Consequences, June 22, 2021

    Here is the moderators email elizabeth.cooney@statnews.com I just wrote her to please ask Koroshetz to provide any evidence that "Long Covid" with the exact symptoms of ME/CFS is a novel disease, and mentioned that NIH has vastly underfunded ME/CFS research, and that NIH might be deflecting...
  8. J

    Intermittent fasting - restricting daily hours of eating - and ME/CFS

    your intermittent fasting—is it several days a week/month eating no food? Or several days eating very low calorie?
  9. J

    A proprietary herbal drug Young Yum Pill ameliorates chronic fatigue syndrome in mice, 2021, Yin et al

    https://hk.asiatatler.com/life/wai-yuen-tong-young-yum-pills-traditional-chinese-medicine https://www.posharpstore.com/en/wai-yuen-tong-young-yum-pill-24-capsules 2nd link lists ingredients. Maybe I need to wait until they release the not-so-young Yum pill version…..
  10. J

    People Want an Alzheimer’s Drug. This Isn’t the One. NY Times

    https://www.nytimes.com/2021/06/07/health/fda-approves-alzheimers-drug.html?action=click&module=Spotlight&pgtype=Homepage Approved.
  11. J

    Canada - Unknown brain disease in New Brunswick

    https://www.nytimes.com/2021/06/04/world/canada/canada-brain-disease-mystery.html?referringSource=articleShare Mysterious Brain Syndrome Stumps Canadian Doctors One of the comments in the comment section references MECFS.
  12. J

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    The positive response to anti-virals is likely due to a mechanism *not* related to killing/ inhibiting viruses. This was pointed out by Naviaux, but I can no longer find it on his website. EDIT— here it is https://www.omf.ngo/viruses-and-cfs-statement-by-ron-davis-and-bob-naviaux/
  13. J

    Klimas webinar "Understanding ME/CFS Today: A Clinical & Research Approach " May 26

    Here is the recording of the webinar...some yoga mantras on here.... cured my MECFS straight up....
  14. J

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    https://en.m.wikipedia.org/wiki/Hepatitis_C Another example of a chronic virus that can make people sicker over time. I do think that MECFS patients get worse over time. I also think that the chronic, sub acute virus concept is a dead end and won’t pan out—mostly an opinion, but also because...
  15. J

    Open Medicine Foundation (OMF)

    The Glue Grant: An interview with Dr. Ronald Tompkins
  16. J

    New Study Will Assess Tysabri Effects on MS Cognitive Fatigue

    https://multiplesclerosisnewstoday.com/news-posts/2021/01/21/new-ms-study-by-kessler-foundation-researchers-will-assess-effects-of-tysabri-on-cognitive-fatigue-in-relapsing-remitting-multiple-sclerosis-patients/
  17. J

    Designing a questionnaire on ME/CFS onset

    Should add “medication” or “iatrogenic” to the list e.g. cipro, etc.
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