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  1. J

    USA: InCellDx Dr Patterson - New lab service offering cytokine tests to Covid longhaulers

  2. J

    Use of 1-MNA to Improve Exercise Tolerance and Fatigue in Patients After COVID-19, 2021, Chuzdik, preprint

    https://www.medrxiv.org/content/10.1101/2021.07.14.21259081v1 Background Coronavirus disease 2019 (COVID-19) is a serious respiratory disease that results from infection with a newly discovered coronavirus (SARS-COV-2). Unfortunately, COVID-19 is not only a short-term infection but that...
    • Jaybee00
    • Thread
    • 1-methylnicotinamide long covid nicotinic acid paper treatment
    • Replies: 5
    • Forum: ME/CFS research
  3. J

    NLS Pharmaceutics Announces the Appointment of Eric Konofal, M.D., Ph.D. as Chief Scientific Officer (ME/CFS is mentioned)

    But… they say orexin activation involved also. https://www.biospace.com/article/releases/nls-pharmaceutics-announces-new-study-data-confirming-mazindol-s-unique-orexin-pathway-activation-for-treating-narcolepsy/
  4. J

    NLS Pharmaceutics Announces the Appointment of Eric Konofal, M.D., Ph.D. as Chief Scientific Officer (ME/CFS is mentioned)

    https://en.m.wikipedia.org/wiki/Mazindol
  5. J

    Long COVID or [PASC]: An Overview of Biological Factors That May Contribute to Persistent Symptoms, Proal & VanElzakker, 2021

    Wow..it’s a tour de force. Phillips is a Lyme disease guy.
  6. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thread….
  7. J

    Pathomechanisms and possible interventions in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS),2021,Fluge,Mella,Tronstad

    I was anticipating that they might have some suggestions for very specific treatment protocols in the paper. There is this but it seems more speculative. “Possible trials could include drugs that reduce serum IgG by targeting Fc receptor neonatal (FcRn), anti-CD38 antibodies to target...
  8. J

    Over which physiological abnormalities in ME/CFS is there a scientific consensus about?

    I wrote on the M. Tack thread that the finding of very low erythrocyte sedimentation rates--ESR (<3mm/hr) seems to be consistent and confirmed by 2018 Blood (Saha/Davis) paper. The problem (for the clinician and the patient and maybe the researcher) is that the diagnostic labs do not flag low...
  9. J

    Whitney Dafoe Updates

    This is the one bit of good news “I first took a test to see if the drug would work for me which was an overwhelming yes” Looks like they found some strong signal/indication.
  10. J

    Whitney Dafoe Updates

    Bad news
  11. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Results are validating!
  12. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

  13. J

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    Also brutal peer review. Received 16 February 2021, Accepted 3 March 2021, Available online 11 March 2021.
  14. J

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    Perez the one who said that he will continue CBT for epilepsy even though a study showed it was ineffective. Doesn’t really define the symptoms of FND as far as I read, but admits that it used to be called hysteria.
  15. J

    Passive transfer of fibromyalgia symptoms from patients to mice, 2021, Goebel et al

    Are there accounts of FM patients who underwent plasmapheresis or immunoadsorption who went into remission?
  16. J

    Open Medicine Foundation (OMF)

    Also wages in the USA are much higher on average than in the UK (about a third higher). https://en.m.wikipedia.org/wiki/List_of_countries_by_average_wage
  17. J

    Open Medicine Foundation (OMF)

    If you are trying to insinuate that compensation is excessive, I will respectfully disagree.
  18. J

    Open Medicine Foundation (OMF)

    Also total compensation includes health benefits, etc., so actual salary will be lower. https://www.nfp-solutions.com/2019/02/21/reporting-compensation-in-990/
  19. J

    Open Medicine Foundation (OMF)

    Median NGO CEO salary in California is $196k so OMF CEO salary is below average. https://www.salary.com/research/salary/posting/chief-executive-officer-ceo-non-profit-organization-salary/los-angeles-ca
  20. J

    Dysregulation of brain and choroid plexus cell types in severe COVID-19, Yang et al., 2021, Nature

    If this paper is so flawed, I’m surprised *I guess* that it survived the severe peer review of Nature.
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