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  1. J

    When Dying Patients Want Unproven Drugs

    Long—haven’t read yet (ALS) Patient-advocacy groups mobilized to demand access to a controversial new drug called Relyvrio. But hasty approval comes at a cost. https://www.newyorker.com/magazine/2023/06/26/relyvrio-als-fda-approval
  2. J

    Fighting Post-COVID and ME/CFS – development of curative therapies, 2023, Scheibenbogen et al

    Vericiguat has been trialed by a bunch of patients and it didn’t work.
  3. J

    Strawberries Improve Pain and Inflammation in Obese Adults with Radiographic Evidence of Knee Osteoarthritis

    In general I’m not against “big agriculture”, but the commercially produced strawberries in the USA are generally large and flavorless, and I tend not to buy them. When I was younger I believe that the strawberries tasted much better.
  4. J

    Can vaccines cure ME/CFS or Long Covid?

    So maybe the JEV vaccine didn’t help Rachel much long term after all.
  5. J

    Monitoring Carotid Blood Flow Using In-Ear Wearable Device During Tilt-Table Testing, 2023, Hemantkumar Tripathi MD et al

    https://www.cnbc.com/2023/06/13/stat-health-in-ear-wearable-promises-it-can-predict-fainting.html KEY POINTS STAT Health on Tuesday announced its new 24/7 in-ear wearable, called STAT, which measures blood flow to the head. When users stand up, the earpiece automatically tracks changes...
  6. J

    The effect of hyperbaric oxygen therapy on myocardial function in post-COVID-19 syndrome patients: a randomized controlled trial, 2023, Leitman et al.

    No bueno or לא טוב Why would they declare a COI on the earlier paper but not this one?
  7. J

    Long Covid in the media and social media 2023

    Don’t know if I love the headline here—does not mention MECFS but it is an opinion from the Washington Post which is good. The mystery of long covid is getting closer to being unraveled https://wapo.st/3NqQsx9
  8. J

    Research news from Bhupesh Prusty

    Cort article here Prusty on Herpesviruses, Messed Up Mitochondria and a Biomarker for ME/CFS and Long COVID (?) https://www.healthrising.org/blog/2023/06/09/prusty-on-herpesviruses-messed-up-mitochondria-and-a-biomarker-for-me-cfs-and-long-covid/
  9. J

    Long Covid in the media and social media 2023

    Um ok. Am I allowed to be cynical here? I think people sometimes confuse prolific tweeting with making substantive scientific contributions.
  10. J

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    I keep thinking that the spontaneous recovery was n=1, the woman that he has mentioned before who worked in his group who wrote computer apps from her bed, who had MECFS for 6 years. Would be encouraging if the n>1.
  11. J

    UK: Invest in ME Conference 2023

    FYI This person is live-tweeting the conference.
  12. J

    A catatonic woman awakened after 20 years. Her story may change psychiatry. Washington Post

    https://wapo.st/43BZRXH New research suggests that a subset of patients with psychiatric conditions like schizophrenia may actually have autoimmune disease that attacks the brain. “The medical team set to work counteracting April’s rampaging immune system and started April on an intensive...
  13. J

    Long Covid in the media and social media 2023

  14. J

    UK: Invest in ME Conference 2023

    Some live tweeting but not informative
  15. J

    UK: Invest in ME Conference 2023

    Anyone going to this meeting?
  16. J

    Long Covid in the media and social media 2023

  17. J

    Closed USA, Texas - Long Covid stem cell trial - Hope Biosciences

    Success they say
  18. J

    Long Covid in the media and social media 2023

  19. J

    Long Covid in the media and social media 2023

    Post copied to Anti-SARS-CoV-2 Monoclonal Antibodies for Long COVID (COVID-19) (outSMART-LC)
  20. J

    Anti-SARS-CoV-2 Monoclonal Antibodies for Long COVID (COVID-19) (outSMART-LC)

    Post copied from the LC in the media thread
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