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Here comes Natalie!!

Chronic pain, fatigue, rashes: As tick territories are expanding, so too are the number of illnesses they cause...

German government decimates research funding for Long Covid https://www.wsws.org/en/articles/2023/07/21/twuv-j21.html

https://www.nature.com/articles/d41586-023-02299-w Investigations suggest that, in some fields, at least one-quarter of clinical trials might be problematic or even entirely made up, warn some researchers. They urge stronger scrutiny.

https://www.newyorker.com/magazine/2023/07/24/multiple-sclerosis-new-treatment Multiple sclerosis was once seen as a “dead-end disease.” But lots of little interventions have added up to remarkable progress. Should that change how we take on other conditions? One good thing was this. “Louth...

Really good investigative report on likely a largely bogus procedure—USA focused. Not MECFS. “Medical device makers have bankrolled a cottage industry of doctors and clinics that perform artery-clearing procedures that can lead to amputations.”...

Now published - details at this post Preprint detail below *** https://www.authorea.com/users/638259/articles/654119-bioimpedance-spectroscopy-characterization-of-osmotic-stress-processes-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-blood-samples Bioimpedance spectroscopy...

Can someone from here contact a UK MECFS organization to see if they will write a formal letter to a UK MS organization with an expression of concern (indicating that this type of BS besets the MECFS research arena and will be a total waste of money)? If they can write a formal letter and this...

Morgan Fairchild has MECFS and partner had LC apparently. https://me-pedia.org/wiki/Morgan_Fairchild

Well there is this….for data lovers

But Eric Topol gave it a five star rating. As did this person (yes I know this person is controversial….)

From this paper Altmann et al. 2023 The immunology of long COVID https://www.nature.com/articles/s41577-023-00904-7 https://www.s4me.info/threads/the-immunology-of-long-covid-2023-altmann-et-al.34116/

Not sure this is the right place to post this—it’s a poll about fycompa looks like it helped one person but not another. improvement immense. For more than 5 years I had severe migraines up to 20 days/month, then since Covid extreme "brain symptoms" - since then 2x light migraines in 5...

I don’t disagree with this but I still feel it’s worth looking into—one remission>none.

Their remission likely had nothing to do with their “micro-biome” and everything to do with the antibiotic, especially minocycline and maybe doxycycline to a lesser extent (their protocols say they administer mino or doxycycline). Minocycline is a well known neuroprotectant and there are many...

Interesting—not MECFS but some gaslighting stuff happened to an oncologist/surgeon. https://wapo.st/3NGOtn3

What does this even mean? Like I seriously don’t understand what he is talking about.

Gaffney Dogma and doctrine!

https://www.indonewyork.com/science/luca-beckenbauer-franz-beckenbauer-s-grandson-gives-up-his-dream-h90692.html Luca Beckenbauer: Franz Beckenbauer's grandson gives up his dream of a professional career because of Long Covid