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This may be a step forward from a similar study done years ago using GP records. They found that people with ME had more GP visits in the previous year with the commonest reason to see the doctor being "illegible" :)

Personality traits are such a dubious, subjective subject this may be the start of something that will become a firm science one day .... or maybe not :wtf:

A friend's grandfather lost a leg in the. He had a mirror he used when he felt phantom pain that uncramped his lost leg. The family too it for granted :)

It is so weird that they call it an emotionally based illness because there are no physical signs but then demonstrate physical signs to confirm they are right o_O

It sounds like he believes ME is just fatigue. That is what happens when all the other symptoms of ME are ignored by the "experts" and their research. It is like saying MS is just fatigue by ignoring the paralysis. :banghead:

Sadly, in the UK especially under the FND work but elsewhere as well CFS and fibromyalgia are being used more and more as simply symptoms. if you have fatigue you have CFS, if you have pain you have fibro. Maddening.

I think you can safely say you have an abnormal response to exercise. Before I knew very much about ME I was still active up to a point, mildly affect probably. I found it much easier to walk for 20 minutes than to stand and wait for a bus, particularly if I had children with me. From the...

I seem to remember the theory of post polio syndrome is that the polio virus damages the end plates of the muscles and as they are used they accumulate damage until after about 30 years people have reached the point where they no longer work properly so it is not a continuing infection. The...

That seems like a very good way to categorize what we can do. Dr David Bell from the Lyndonville epidemic said that his patients could do lots of things as long as they were lying down. There is a particular feeling I get which may be the only reward with this disease. At times I lie down flat...

That is not a paraphrase, that is the complete opposite of what I am saying so I want to make that very clear. (My GP only has one code for ME and so I am down as having CFS which label does not describe my disease or anyone elses's) I am literally bewildered by why I am doing anyone a...

CFS is a wastebasket diagnosis. There are no wastebasket patients. Before CFS became a big thing in the UK people were told they had depression, then it was CFS, now you are as likely to be told you have FND and the situation is worse for children. Sorting out what patients really have is...

We get used to things, don't we :) I think it is very likely you are right about the brain not being able to process information. Like you, I have formed my own ideas of what is happening with the strange symptoms that are so hard to talk about and no one medical seems to know about. The idea...

Blindsight is where someone goes blind in one eye after a stroke. If they are shown a picture of a lorry in the blind eye they do not see it but when asked to name a vehicle they will say lorry. I think what you are experiencing are some of the strange visual problems which come with ME. I was...

The paper, which was a PhD dissertation, was discussed in Time magazine a short time after it was published. That could not have happened without some high level input. There had not been time for word of mouth to have spread it, it suited someone's interests. I think we can't really understand...

Oh, that one is easy. The example I read was justifying a diagnosis of epilepsy and psychogenic epilepsy (called pseudoepilepsy in the article) If you have a seizure while cooking and burn yourself you have epilepsy but if you have a seizure but manage to move from the cooker and not get a...

Unfortunately, that 40 years of research has had about as much funding as 1 year of MS research (maybe more but definitely not much) and much of that research has not actually been on ME but on fatigue states which may not be relevant. Also the patients being tested have been a rag tag bunch...

Myalgic encephalomyelitis was a specific disease. When the CDC sent a team to investigate the outbreak at Lake Tahoe they ignored those doctors who recognised it as ME and made up their own new disease CFS where something that came in an outbreak was defined as 6 months of unexplained fatigue...

I think if you get sore throats, swollen glands, flu like feeling or just feeling sicker, rather than just tired or exhausted, you have PEM. If you do not get that it doesn't mean you don't have it, things could be going on under the surface. What you get in ME is a different response to...

Chronic Fatigue Syndrome is a such a vague diagnosis that it can cover many things since fatigue is such a common symptom but ME is a specific diagnosis. It is only when it is used as a synonym of CFS that there is confusion. The effects of exertion we experience are not seen in any other...

Moderator note: This post has been copied and subsequent posts moved from this thread: Concerns about craniocervical instability surgery in ME/CFS _________________________________ Chronic Fatigue Syndrome is a such a vague diagnosis that it can cover many things since fatigue is such a common...