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I have not respect for the University of Bristol so I am dubious about all their work but this made me think about someone I used to know. Years ago I went to a disabled group and one woman there was not very attractive. She was very overweight, now I am a fine one to speak, but she was...

Now that DNA sequencing can be done easily and cheaply they are finding that it is massively more complicated than they expected. Basic science is like that and we have to go through the learning stages to get anywhere but things can be overhyped of course and we know that some doctors are just...

That actually highlights how wilfully wrong they are. Scrupulosity is not encouraged among the religious and is, as you say more likely to be a form of OCD a recognised mental disorder. A religious conscience is something else altogether and is only a behavioural or mental disorder if you use...

What the implications are I don't know but I have read that they find DNA from all your children in your blood. The science of genetics is immensely more complicated than anyone expected and will take a long time to unravel. The way one x chromosome is inactivated at random in every cell of a...

Massage moves the muscles so some people with ME can't take it. However, I have been having massage every 3 weeks for many years now. It has helped keep my muscles soft as they keep wanting to go into spasm. I can't manage to do anything with them myself but mechanically moving them makes a...

Well they don't ask patients so why would they worry about asking mice?

In a small community during an epidemic the chances are that Dr Bell saw patients early in the illness whereas many people wait for years before seeing a doctor and then get the wrong advice. It is often only when they get bad that they discover the ME community and begin the things which help...

I actually think it could be good in theory though how it will work in practice I don't know. Going to a GP and he says nothing wrong with you that wouldn't be fixed by losing some weight and getting some exercise will feel much better if he prescribes a diet group and a fitness class. It might...

Another problem with their theories is the dependence on "adverse childhood events" For one thing it smacks of Freud and psychoanalysis where they will search for the "event". How many people could dredge up an adverse event? Very few people get to adulthood without something veering from the...

I once asked a psychiatrist why my subconscious mind should want the exact opposite of my conscious mind but he had no answer, or maybe he didn't think I was worth arguing with. He had proclaimed that my subconscious mind did not want to work! He did not ask my conscious mind why I disagreed...

Their theories depend on assumptions, never tested, about their patients which a simple history taking would correct. One patient with documented proof that they exercised but did not become better invalidates everything. We could have a long debate about large campfires being lit in the arctic...

The frustrating thing about ME is that everything they test for is normal but our bodies aren't working in a very profound way. How can we be so ill when all the tests are normal? It must be some widespread process that is very basic to biology but is just a little bit off. I think of it as...

I don't know what the article was going on to say but the Royal Free experts like Ramsay were convinced it was an enteroviral infection. In 1955 it was very difficult to grow viruses in the lab as they will only grow in living tissue. Even in the 1970s they still used eggs. Enteroviruses also...

All the cardiolipin research into ME seems to have disappeared since the death of the Hawaiian doctor who did most of the work. I remember people complaining that the NIH was also doing work on it but used different terminology so it was all becoming confused then nothing more was said. It had...

Remember that the McEvedy and Beard paper, a PhD dissertation which claimed that the Royal Free epidemic was mass hysteria, was on the cover of Time magazine within a few months never mind in a scientific journal! It is in someone's best interest that ME is downgraded and the patient's fault.

That's why I like the name ME as it emphasises muscle problems and neurological problems without fatigue being there. It just wasn't seen as primary in the days before CFS. I suppose SEID is better from that point of view as well.

This may be off topic and not relevant but the only test I have ever had that showed something wrong was during a study done looking at acetylcholine. They used a doppler machine to measure the dilation of the blood vessels then dropped some acetlycholine on my arm. The acetylcholine was not...

I have exactly the disease that is described for the epidemics. Studies nearer that time showed there were also sporadic cases. The Incline Village outbreak where the invented CFS and the Lyndonville outbreak showed that epidemic ME carried on. When forums started it was common for people to...

It would be fine if it was upfront about being industry promoted but these sorts of group claim to be independent so their views are given more weight. The tobacco industry did this to great effect. I have heard that scientific papers have been written by industry and then a scientist has their...

I have a degree in biology and a lifelong fascination with the subject which means I have read widely but becoming more severely affected and family problems means I may have missed some new findings. I was under the impression that healing from surgery took at least a year for one thing with...