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We're talking about maybe 4-5%, so pretty much, yeah. I'm talking about systems here, not individuals. This is not a profession warm about contrarian choices.

Does anyone have a sense of what % of ME organizations we are at? There aren't many, it seems to me that we are probably at or above 80%. Very impressive.

And yet the entire medical profession is not only listening to them, they have applied this very model from the start and continue pushing it every single day to most people with LC. They're just grumbling that it's failing and people are pointing it out, want to simply enforce the belief that...

Unfortunately, I don't think anyone can actually do such research. We will create quantum computers able to fully simulate physical matter and have commercial nuclear fusion before humans develop the ability to self-reflect to this degree. And probably general artificial intelligence. Turns...

The denial continues but the arguments get weaker over time. The fact that the standard trope, the current standard of "care", can only be written as opinion pieces, says so much about how gigantic the entire concept of psychosomatic ideology has been. Not that it ever mattered much, but the...

Organic/grassroots is whatever people choose to fund. It may not change much, or it may, but the sum of all efforts is what makes a difference in the end. Then again I saw a reddit thread today on our provincial subreddit asking if anyone else had gotten serious health problems since they got...

That list of signatories is a doozy. Can't believe it cites the "Twitter files" after the whole thing got discredited. Signing your name to this is like a tag that says "I'm not a serious person". Basically most of the "intellectual" UK/US alt-right, some prominent COVID deniers and lots of...

Most people don't know about LC. That probably applies to most people with LC. With medicine being completely derelict, awareness is the first step, but even respected diseases with funding and research networks do plenty of basic awareness. There is simply no system set up for this.

We could probably raise 5-10x as much money easily if medicine were to simply acknowledge that it's a serious issue, whether we are talking about LC or ME. Private fund-raising requires legitimacy. All diseases that manage this have significant recognition, have many MDs on board and...

:bag: Words truly mean nothing to charlatans. It's that nearly the entire medical profession agrees and has parroted those that is absurd. It's what failed, and they pretend like it's the solution. It really does explain everything about the major role religion, beliefs and superstition has...

It's actually famous how medicine has thoroughly ignored and failed to do anything, words and actions both. So that's quite a tall tale they've got going on here. There is still basically no information out of medical sources about Long Covid, so the entire premise is plain silly. Nearly all...

This is the wrong framing. This is the correct framing: The patients are merely reporting what is happening to them and appropriately seeking help at the right place, which is then contested because medicine is still limited in what it knows, but is unable to operationalize those limitations...

Not surprising. Ultimately the biggest flaw with evidence-based medicine is that more often than not, if you change the people you change the outcome. And it applies at every single step, from design, approval, funding, oversight, review, meta-review and so on. Every single one of those steps...

It's like they're playing roulette but with an additional option where either red or black gives them back all their money, and if they fall on 0/green the casino gives them a win, even if they didn't bet on it. This literally disproves the model, and they market it as a win anyway, and will get...

That's my assumption as well for why they don't care and don't bother. They are confident that in the worst case scenario no one but us will know or care about it. If anything, hubristic editorials are likely to be written about how they prevailed against activists. At least for a while it will...

An IAG who, as best as we can tell, has zero powers. The promised updated review was not accepted by any working group, it is merely advisory. Even if it gets accepted and published, it would be, what, an independent review, competing for attention with the current one? It's a "dog ate my...

Given that most with Long Covid report finding it impossible to get diagnosed, I don't know what that even means. Reducing those costs always had the same solution: solve the damn thing, quit covering it up, record what is happening. But they won't be doing they, will they? All those costs are...

We're missing from our own protests. How meta.