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I think that's the problem here. The open-ended "the treatments work, if you have the motivation" allows them to argue that it hasn't been exhausted, that they can always, at any moment, just choose to stop behaving the sick role. They can simply get moving and it'll be over in a week. Even...

There's also this that bothers me, the navel-gazing: As if health care is the only work environment like this. But of course it is their work environment, and so the only one they can think of that is like this. Just pure uncut freebased hubris.

It never ceases to amaze seeing a powerful modern pseudoscience so late in technological development. And scrambling to explain how every assumption they made turned out to be wrong, all they can think of at this point is to take the consequences of illnesses they don't understand and...

I doubt it's a realistic process. Even diseases with such a clearly known pathological mechanism that they can benefit from massively parallel automated testing are barely seeing any results yet, there are too many possible combinations to try and the process of human trials is the slowest...

Such a bizarre waste of resources. Despite the title, this study has nothing to do with validity. They have no means to validate their imaginary conversion disorder. I don't know who decided that there are 3 "main" FSS diagnoses, but I don't think that's a thing. Peptic ulcers used to be the...

Another set of recommendations were put to public input. The survey can be answered here, before April 22: https://www.research.net/r/CANPCCRecommendationCommentPublic. The survey can be found in PDF form here: https://canpcc.ca/app/uploads/2024/04/can-pcc-batch-2-public-comment-english.pdf...

The Symptoms, Nature, Causes, and Cure of the Febricula, or Little Fever: Commonly Called the Nervous or Hysteric Fever; ... by Sir Richard Manningham Those damn wandering uteruses, causing fevers and whatnot. A quick scan of the transcript looks pretty good.

This is really significant. It's clearly fashionable to try to make up clusters here, lots of studies doing this, but given the fluctuating nature, using single points in time is highly problematic, and that's in addition to how much overlap there is. I'm not sure they are really that important...

Those are actually some marked differences, and it's odd to have matched controls with significant health issues: The EQ-5D is a very poor instrument for this. I don't see how this leads to headlines that most problems resolve by 24 months. It seems to have been taken from this: Which is...

Speaking of: Long Covid clinics 'not helping', patients tell committee https://www.rte.ie/news/ireland/2024/0417/1443945-long-covid/ It would make a nice meme, to say having a disappointment at a LC/fatigue clinic rather than an appointment.

It was mostly an update about reporting possible future things, nothing to report, so not even that. Nothing happened, so there was nothing to report, and what we were told is partial at best. 6 months later, still nothing. So that was really just for show. As far as we know, nothing is...

That was pretty hard-hitting in an understated way. This is the way massive scandals are talked about. I appreciate that Kane put it as "the default belief". It's never been anything more than that: a belief. A belief about illness. A very unhelpful belief about illness. About other people's...

I see a crapton of people with FM, and on this sub, reporting PEM. We're mostly stuck with diagnoses based largely on what individual MDs fancy or happen to believe in, rather than what the patients are actually reporting. It's impossible to say what is valid and what isn't in terms of...

Might as well look for marriage troubles from divorce records in countries (or times) where divorce is illegal, or at best highly frown upon and limited geographically or to select, say rich, people. Extremely unreliable. Scientists need quality primary data to work with. Here the primary data...

There is a very realistic case that FND overruns Long Covid before it does ME/CFS. Unless things change radically, it will happen sooner or later. It's a race between this and a breakthrough solid enough to overrule all the sunk cost spent by this point: I think that HSE is the Irish health...

It mostly looks copied from addiction rehabilitation programs. Which is completely inappropriate here, but in light of how we are described, it certainly fits as coming from the same place.

This is so bizarre. I'm trying to extend this rationalization to other professions and nothing computes. It's so far outside of all norms to be so dismissive of not only the tools of the trade, but to insist that those same tools they here scoff at have all the answers, therefore when they come...

To FND ideologues, dysautonomia is definitely FND, but it basically encompasses pretty much all neurological symptoms that lack a firm diagnosis. Long Covid turned out to have been a major boon to them. Even more so as no one wants to deal with those issues. The blaming it on the patients...

One of the most common threads in the Long Covid sub-reddit is relapses, people who thought they were recovered, then deteriorated. Sometimes after weeks. Sometimes months. Sometimes after a reinfection. Sometimes it's the first time, they got acute COVID (or another illness), recovered and...

Not too well versed on the technical legalities of how intent is defined in murder, but I'm pretty sure that if someone repeatedly does an action that they are warned will lead to someone's death, it's certainly close enough to be considered as intent. People have the right to ignore warnings...