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Out of curiosity, tried to find what is hypertension, the mechanism itself, and as best as I can tell... it's unknown. There is a description of what it is and risk factors but the why appears to be, dare I say, (cue spooky theremin) mysterious. Which I guess means lots of possibilities. The...

More like between 'bad days' and 'worse days'. I haven't had a good day in... I don't even remember. That old life is so far in the past I can't remember any of it. It's a completely different version of me, even though I am still mostly that same person. In the mildest patients good days...

Two more recommendation proposed. I still don't see the point of this process, other than, hey, $9M for a low-effort report that no one will care about anyway. https://canpcc.ca/app/uploads/2024/05/can-pcc-batch-3-public-comment-english.pdf In non-hospitalized adults with post COVID-19...

None of this really takes into account the fact that the professional associations have declared their hostile intent and refusal to implement the guidelines, and that not a single clinic, let alone care board, has actually implemented it as intended, following through on that prior declared...

Rare to see this acknowledgement, but it would be more accurate to say that because of the aforementioned discrimination, in severe cases, patients are abandoned and left to die slowly of starvation even though they don't have to, that it's a choice made by health care professionals. But that's...

It's one of the most widely reported problem, and one of the most disabling. People are literally losing the ability to read and communicate, to do basic activities of daily living, and they can't find anything at all?! Any serious scientist should be able to question their own results, that if...

No they don't. So the entire premise of this "study" is invalid. They are comparing ineffective things with other ineffective things, something that deserves to be mocked mercilessly. Might as well compare with potatoes for all that this matters. As in having potatoes deliver whatever...

Looks pretty good to me. What a contrast to the clusterfuck of changing a few words and there in Australia, which really stands like a sore thumb in a recent string of guidelines and clinical recommendations like this, which actually bother to make sense of reality.

If you're still on xitter, it'd be good to share at least 1-2 things about the conference. It keeps on being demoralizing how few people respond, but it's leaving a record of what was known at the time, how much effort a few renegades were able to push through the indifference of the profession.

Actually if anyone is hesitating, no need to sign up really, it just asks for a name and email and you're good to go. Easy peasy.

I'm not sure about that. ME data is unreliable, but although there is a bit of a peak in teenage years, recovery odds are higher. It's really around mid-20s that prolonged disability starts increasing. In those days, that's plenty of time to be, hell, grandparent. In the LC community I often see...

Hard to find the right words for it, but by "the medical profession" I mean the institutions of medicine, as separate from what individuals can choose to do, usually here involving bucking what the institutions of the profession do, what they teach and acknowledge as true. As we know, MDs who...

How so? And what does "best understood" mean anyway? Based on what? The same old crap pseudoscience built of logical fallacies that has led this to be wholly misunderstood, misinterpreted and maligned? I keep seeing this trend where MDs write stuff like "what do we now know about LC?" and...

Doctors hate this one trick

Uh, almost like there isn't some separate store of energy for movement, cognition and emotions, rather metabolic energy is metabolic energy and if you deplete reserves other forms of exertion also suffer from poorer performance. Of course there are other factors limiting this which have no...

Nope. It's not provable. It's always absence of evidence and the use of a default explanation. Used to be demons/spirits, now it's the magical mind-body thing. Same idea, really. I've seen more than enough proponents writing about this, it's always justified by not figuring out the real cause...

Well, patients, and a few other people, have. The medical profession? Literally the problem, the blocker in the way.

It would really only take one very wealthy family with the determination to solve this. That's all it would take and everything would change. But that combination is too rare.

They also collaborated with the World ME Alliance to produce this video for World ME day.

Not really sure where else to put this, but this video is really great.