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    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    Yeah, but I didn't 'blame' her for it, I was just pointing out that the sort of post I had a feeling I'd see eventually, ended up popping up. Now, I don't think it matters how many bandwagons this guy jumped on. I'm not familiar with him. There have to be others who aren't, either. So think for...
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    Relationship satisfaction, communication self-efficacy, and chronic fatigue syndrome-related fatigue, 2019, Milrad et al

    Don't want to defend this. But she's next-to-last author, which I understand is the least important placement. My guess would be her involvement was limited to providing some kind of info on patients. Perhaps contact info? The question would be whether she knew fully what the intention of the PI...
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    Is it helpful for MEPedia and ME advocacy to be broadened to include possible co-morbid conditions?

    I think this post here provides one unfortunate answer to the question posed as the topic of this thread. However, it's just one post in one of many threads Jen Brea has started with the purpose of asking questions about CCI and the surgery that she claims has led her to remission. I don't know...
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    MEAction Responds to Attacks on ME Community in the Guardian and Psychology Today

    I spoke up early on both Twitter and Facebook (Pinker cross-posted), with links to what I think happen to be the best answers to this bizarre, evil propaganda. I disagree with their advice to not engage on these sorts of things. It's not like there aren't a bucketful of credible sources that...
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    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Well, this came out of nowhere, a few hours ago: This guy. https://en.wikipedia.org/wiki/Steven_Pinker Quite a few people have stepped in to, ahem, discuss this with him. So far, no response. There was one person who seemed to want to step in to challenge anyone's questioning of Pinker's...
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    USA: Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center, Lipkin

    Interesting. I don't follow them on Twitter but am used to seeing their tweets as plenty of people I do follow end up retweeting or responding to tweets so they end up in my feed. Just seemed a bit odd that a meeting with those people would take place with virtually no discussion--nobody even...
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    USA: Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center, Lipkin

    I'm not big on people saying 'why wasn't I told,' but I am scratching my head a bit at this because I sure didn't see any mention of it anywhere. Can't imagine it was open to the public. Strikes me as kind of unusual that you put all of these well-known ME experts (plus Unger, Nath, Lipkin, etc)...
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    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I think we've lost this. Completely. ME/CFS is what Jen Brea says it is. It's been heading in this direction for a long time. We're almost completely there.
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    The Stanford Daily: Stanford Medicine professor (José Montoya) fired for violating University rules of conduct (june 2019)

    Well, now this is national news. https://www.thedailybeast.com/stanford-professor-jose-montoya-blames-hispanic-heritage-for-alleged-sexual-misconduct-that-got-him-fired I almost can't believe that he'd put this response out there. "I didn't know any better because..." I mean, I don't want to...
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    Daily Mail: Three ME patients reveal the accusations they have endured

    I don't recall seeing pushback from them during Millions Missing. Maybe I missed it. But that would've been a bad look, I think. They tend to pile on when SMC has something to push (or smear). But it's entirely possible they did this & I'm not remembering correctly. But gaslighting in comments...
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    Claire Fox (Fiona's sister)

    Ah. so this is why that tweet surfaced again. I had responded to it, and Sharpe never blocked me. Now this comes up, and I got a new like, and all of a sudden I see he blocked me. Oh well.
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    Multi-Site Clinical Assessment of ME/CFS (MCAM): Design and Implementation of a Prospective/Retrospective (2017) Unger et al.

    Huh. When I first saw this earlier I could've sworn the only date was April 15th, 2019. I don't remember this at all. Oh, well.
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    Multi-Site Clinical Assessment of ME/CFS (MCAM): Design and Implementation of a Prospective/Retrospective (2017) Unger et al.

    Multi-Site Clinical Assessment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (MCAM): Design and Implementation of a Prospective/Retrospective Rolling Cohort Study *** Looks like, unless I missed it & this isn't new, the CDC has published something significant on the multisite study...
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    B-Lymphocyte Depletion in Patients With ME/cfs: A Randomized, Double-Blind, Placebo-Controlled Trial (2019) Fluge et al

    New Scientist just put an article out on this: https://www.newscientist.com/article/2199217-promising-treatment-for-chronic-fatigue-syndrome-fails-large-trial/ Paywalled after a couple of paragraphs.
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    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    Well so far this is starting out just as bad as it was for at least the first half of yesterday's stream.
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    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    Authorize Flash for this? Nah. This thing is wildly inconsistent. Keeps stopping, so far three browsers including Chrome. Several times it stopped when I was closing a tab in a different browser. At the moment runs on my phone using Chrome but it did stop before on that. I wonder how often this...
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