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Full Title: Multi-Disciplinary Collaborative Consensus Guidance Statement on the Assessment and Treatment of Fatigue in Post-Acute Sequelae of SARS-CoV-2 infection (PASC) Patients Authors American Academy of Physical Medicine and Rehabilitation Multi- Disciplinary PASC Collaborative 1...

I have mixed feelings about this but I always wonder when I see that conferences like Invest In ME have BPS types attending/presenting, is there any possibility that they may see evidence they might otherwise not, which might move them to reevaluate. I think the chances are about zero (might not...

This is a relatively rare and welcome item--a rather scathing column about the whole brouhaha. SIGMUND OLAFSEN Worthless and unethical ME research As a researcher, I am frightened that there are still some who want self-reported, subjective effect goals as an outcome of research, writes Sigmund...

Not terribly surprising coming from someone who published a blog (a guest post that wasn't actually that horrible, though there's plenty of scorn to be found in the comments) with the title... http://aetiologyblog.com/2010/04/26/chronic-fatigue-syndrome-a-leg/

I just remembered I have a pdf of the Ciba publication. It's a 20 mb file. I can probably do a Dropbox link here?

Hillary is consistently vigilant about any use of her work, no matter how limited. If she sees this I suspect she will ask for it to be removed.

Convenient way to claim they used the important, authoritative CDC criteria, which stands out to casual readers & medics/researchers whose views were/are already fixed (most of them, let's be honest) and wouldn't read further. And wouldn't care if they did, because it's all the same to them...

@rvallee was of course right to skip this garbage, but I'll always want to make a note of this sort of thing. Actually I'm tempted to actually try to put something together, a review, perhaps, of some of the worst, most offensive, insulting, degrading, unethical, incompetent nonsense that's...

A person-centred test of multidimensional perfectionism and health in people with chronic fatigue syndrome versus healthy controls Fuschia M. Sirois, Loren Toussaint, Jameson K. Hirsch, Niko Kohls, Martin Offenbacher Abstract: Theory and evidence suggests that person-centred models may be...

Hard to be optimistic about something from which there's almost no info from which to draw any conclusions, and I don't think we know a lot about ME in Russia, which suggests the reality for pts is not good. But, looking at the references, well, I have seen papers that cite research we would...

I don't think they're connected, though it's possible (if there's a connection to anything, I would think NICE, although not sure the time frames allow for that speculation to be more than paranoia). I do think, however, that this is not a matter of ineptitude at all. I find it difficult to...

I took a look on Twitter to see if there was any discussion of Roger Chou, in any context. Lots of chatter from people about chronic pain & opiods, and there's quite a bit of concern from interested parties. I only post this because I found a hashtag that popped up a couple of times wryly...

Well, at least they included Crawley's Lightning Process study. I would hate to think that they'd ignore the guidance to omit Oxford studies and not throw that in there.

Thank you, Trish. Mark did indeed go over it all with a fine-tooth comb. I'd only skimmed it when published because I knew the review was garbage & I was kind of burnt out on obvious debunkings that should never have been necessary, let alone put together by rather ill patients to correct...

I'm sure this has all been done to death, by those far better at it than I. But this review is never mentioned as much as the exercise one--barely rates a mention on ME-Pedia's Cochrane page. I knew it would be awful, but I skimmed through for a few key tidbits. I thought the exercise review was...

Well, when I say 'charming' I refer to the disarming pleasantness one might expect from an accomplished con man. Phil Parker lacks that charm & comes off to me more like the used-car salesman version of 'wellness.'

Program will run clinical trial aimed at helping COVID-19 long haulers (Ashok Gupta's NLP "Gupta Program") This is a story from a local news station on the Fox network in Sacramento, California. Mentions a retired professor at Cal-Davis they'd interviewed as she was struggling with Long Covid...

Life-Threatening Malnutrition in Very Severe ME/CFS Helen Baxter, Nigel Speight, William Weir Healthcare (MDPI), Open access Abstract Very severe myalgic encephalomyelitis (ME), (also known as chronic fatigue syndrome) can lead to problems with nutrition and hydration. The reasons can be an...

Recovery from chronic fatigue syndrome: a systematic review—heterogeneity of definition limits study comparison Yasmin Moore Teona Serafimova Nina Anderson Hayley King Alison Richards Amberly Brigden Parisa Sinai Julian Higgins Caitlin Ascough Philippa Clery Esther M Crawley Open access...