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That paper says this: Their reference is Appelman, Wüst & Co, which clearly states that PEM is the worsening of symptoms, not fatigue. It seems like the foundation for Friedman’s arguments is a bit shaky.

Thank you for asking, and good on him for responding. I hope he meant ‘learn about’ or ‘study’ PEM in the last paragraph, as we have no known treatments. Unrelated, how reliable is the DPSQ? Are there lots of false positives for fatigue?

Only pre-LC-vaccine it is. Thank you, @Nightsong

https://archive.is/2025.02.04-121405/https://www.statnews.com/2025/02/04/recover-initiative-nih-long-covid-me-cfs-post-viral-illness/

In isolation, I read it as post-LC-vaccine improves LC. But as you say, the title says pre-LC-vaccine. So I’m confused!

This sounds more like lung damage than ME/CFS-like LC? What kind of patients did they sample?

Why does everyone have to include lies like this? I get that they want to highlight the relevance of their work, but you can do that on the basis of the burden of PCS, you don’t have to go beyond the evidence..

He wants to rebrand ME/CFS as a Post Active Phase of Infection Syndrome (PAPIS). That would be a bit like rebranding lung cancer as a Post Smoking Syndrome just because smoking can increase the risk of lung cancer.

I don’t have access to the paper. Does this mean that they found that vaccination after getting LC improved certain LC symptoms?

There was a Norwegian case of ME/CFS that turned out to be leaky gut. Not quite the same, though.

It doesn’t get more S4ME than this comment :laugh:

Submitted: 2 February 2025 Accepted: 3 February 2025 Published: 12 February 2025 How is the peer review on this narrative review?

Could you explain in laymans terms how you identified those genes back in 2018? Just curious :)

So you’re implying that Cochrane aren’t afraid of anyone?

I don’t believe there’s a reason to believe that pwFlu would score lower than HC, because they would presumably able to complete the tasks at the same rate. Just as how the pwME that were able to complete the test scored the same as the HC. It’s a flawed test designed for a different patient...

You’re going to have to help me out here!

If I remember (and understood) correctly, the ‘effort preference’ was measured using a test that’s designed to measure ‘effort preference’ in patients with e.g. depression. You play a game with a time limit where you have to repeatedly choose between an easy and a hard task of quickly pressing...

That’s very encouraging. Who would these questions be adresses to? Cochrane? And would your MP be able to differentiate a factual reponse from the common lies Cochrane serve us?

That’s a shame.. I hope you get some relief soon!

@Braganca Any updates?