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  1. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Trish quoted from the Roundtable minutes: So why did the discontented three* sign off on the guideline only to tender resignations on 26 July? If they weren't happy why not step down before GC sign off? *Michael Beadsworth; Gabrielle Murphy; Joanne Bond-Kendall
  2. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    There is a British Society of Rehabilitation Medicine on Page 1 of the Stakeholder List.
  3. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    News NICE understates role of exercise and CBT in managing ME/CFS, say medical leaders BMJ 2021; 375 doi: https://doi.org/10.1136/bmj.n2647 (Published 29 October 2021)Cite this as: BMJ 2021;375:n2647 Zosia Kmietowicz The BMJ Note: The statement on the Royal College of Physicians site had...
  4. Dx Revision Watch

    NHS England web pages on ME/CFS

    See: https://www.s4me.info/threads/nhs-website-pages-on-me-cfs-updated-29th-october-2021-nice-publication-date.23065/#post-386542 for ME Association's comments on MEA FB.
  5. Dx Revision Watch

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    The decommissioning of specialist services and re-direction of patients to multi-purpose services like chronic pain clinics or PPS clinics, has been happening irrespective of NICE guidelines. Ironic coming from Barts Health NHS Trust, when PDW has been so keen to see services broadened to be...
  6. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    No Rapid Responses yet to either of the two BMJ 29 October reports.
  7. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I still have Prof Wessely Following me and as far as I can see, he's said nothing so far about publication/content of the guideline.
  8. Dx Revision Watch

    NHS England web pages on ME/CFS

    ME Association on Facebook https://www.facebook.com/meassociation/posts/4522166264507663 =AZWfoSUp6FEW6HUrrBosOlau2WEqAmFLer5IPRgre_ZxJsIkhdHivJOWiuMH6E22iBu-_UPnAIskBr9Nu6Bwvz-u6ueWoA25P6vFReEDaWibUqoB_TpvZpTXOuMSzPLP4XDqOjYcx-e0bAQfo5L8OxX6&__tn__=-UC%2CP-R']ME Association NHS website...
  9. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Is there a copy of the NICE press release that went out yesterday somewhere in this thread? In 2007, a copy of the press release was posted on the NICE site, once the embargo had lifted.
  10. Dx Revision Watch

    NHS England web pages on ME/CFS

    https://www.nice.org.uk/guidance/ng203 https://www.nice.org.uk/guidance/ng9 https://www.nice.org.uk/guidance/ng17 https://www.nice.org.uk/guidance/cg142 and others all have the NICE accredited logo. Some also have the NHS logo. https://www.nice.org.uk/guidance/ng193 also has the NICE...
  11. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Yes, I noticed his "Supports free speech." Ah, well. His loss.
  12. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    That's interesting. Since this afternoon (when I last looked at his account), I've been Blocked on Twitter by Prof Sharpe.
  13. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Facebook =AZU65HsTw5NH6YkgmDeMdeAbVs9eByGthKmqpwkU1v2MGqYwirpJxdy_6bueQ0wE6kJYpT3rrd08SS3onwyu5JZlt9Uei2Xga3ag2ioQf8yxQWWcsTEA6GgIpou3-2xl3cxQ7pB2U0cffulyVTC5vMxQ&__tn__=-UC%2CP-R']ME Association NEW WANTED PLEASE! SOMEONE LIVING IN KENT prepared to be interviewed by BBC RADIO KENT on Monday...
  14. Dx Revision Watch

    Improving images used to depict ME/CFS

    William the Talking Cat didn't appear to own a watch, either, so I ended up feeding on demand, too.
  15. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Yes, Miller and Crawley and Professor Leslie J Findley, among others. https://measussex.org.uk/malmaison-conference-oct-29th-october/ MALMAISON CONFERENCE OCT 29TH – OCTOBER By admin On 21st October 2021 Dr Gabrielle Murphy at Royal Free Hospital says: “Once again the Sussex & Kent ME/CFS...
  16. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    It is possible to submit Rapid Responses to the above. I don't currently have access to the rest of the report.
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