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This person has a Twitter account. Also a ResearchGate presence: https://www.researchgate.net/profile/Shaun-Peter-Qureshi https://twitter.com/shaun_qureshi Possible he maintains the website - but I don't know.

If you peel the URL back to: https://doctorswith.me/nice-2021-a-triumph-of-science-over-discrimination/ you'll get the article: NICE 2021: A Triumph of Science over Discrimination Post date 1 November 2021

My son had acute onset while ostensibly recovering from a gastric bug, a feature of which had been particularly bad headaches and sensitivity to noise and stimulation. Our then next door neighbour's son had had a very similar gastric bug at the same time, also with severe headaches, but he...

Feedback to NCHS on proposals for Postviral and Related Fatigue Syndromes Submitted by Suzy Chapman, November 06, 2021 https://dxrevisionwatch.files.wordpress.com/2021/11/icd-10-cm-september-2021-comment-on-postviral-and-related-fatigue-syndromes.pdf or https://bit.ly/2ZYKAVi Deadline for...

https://apcp.csp.org.uk/news/2021-11-05-nice-mecfs-guideline-outlines-steps-better-diagnosis-management-1 APCP (The Association of Paediatric Chartered Physiotherapists) NICE ME/CFS guideline outlines steps for better diagnosis and management NICE has published its updated guideline on the...

In September, 7 US orgs presented proposals for radical changes to the ICD-10-CM G93.3 and R53.82 codes (p169 Diagnosis Agenda | Presentation slides). NCHS presented an alternative set of proposals (p171 Diagnosis Agenda) 7 reasons why I can't support either proposal: Feedback on proposals...

A reminder of the alternative proposal NCHS is recommending: ICD-10 Coordination and Maintenance Committee Meeting, September 14-15, 2021. Diagnosis Agenda: https://www.cdc.gov/nchs/icd/Sept2021-TopicPacket.pdf Pages 169-172: NCHS recommendation in sum: Revise the existing G93.3 code...

After charging the NHS for the LP training courses for practitioners?

If Dr O'Leary thinks that NICE's decision to use "Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome" and "ME/CFS" for the 2021 guideline instead of "Chronic fatigue syndrome/myalgic encephalomyelitis" and "CFS/ME" (as per the 2007 guideline) will somehow overnight "sort the...

For those not aware, in an August 2020 BMJ Rapid Response, lecturer in philosophy, Dr Diane O'Leary, included this gem: https://www.bmj.com/content/370/bmj.m3026/rr-4 “The term “chronic fatigue syndrome” names a psychiatric condition that sometimes develops in reaction to acute viral...

As bolsters for her own papers and articles? If she was that concerned about the use of the term "Chronic fatigue syndrome" I would have thought she'd have been all over the US ICD-10-CM September proposals - but not a word, that I have seen. According to her, it's sorted in the US because the...

Sorry to go off topic, but the nonsense she spouts about NICE having "dropped CFS" makes my blood boil.

I do wonder whether some of her hubris stems from having been misdiagnosed some years ago with CFS before being diagnosed with Sneddon's syndrome (all public domain and media reported information). Now she seems to think that reversing the order of CFS/ME to ME/CFS has erased the CFS term...

Why is she seemingly incapable of grasping that in the UK, under NHS England's mandated coding and terminology systems, it makes no difference whether you are diagnosed with Myalgic encephalomyelitis/chronic fatigue syndrome, or with myalgic encephalomyelitis, or with chronic fatigue syndrome -...

The fact that the WHO continues to code both terms to 8E49 for ICD-11, is in her view, immaterial. As is SNOMED CT having CFS as the lead term and cross mapped to ICD-10's G93.3. I find it interesting that for someone based in the US she never involves herself in US coding proposals. If the...

She appears to believe that NICE's decision to switch the 2007 guideline title "Chronic fatigue syndrome/myalgic encephalomyelitis" to "Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome" for the 2021 guideline some how magics away the term, "Chronic fatigue syndrome", which...

She appears to believe that NICE's decision to switch the 2007 guideline title "Chronic fatigue syndrome/myalgic encephalomyelitis" to "Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome" for the 2021 guideline some how magics away the term, "Chronic fatigue syndrome", which...

Diane O'Leary is still at it: Meanwhile, NCHS has proposals under review by the Director of NCHS for returning Chronic fatigue syndrome to the ICD-10-CM G93.3 location, under proposed new sub-code: G93.32 Myalgic encephalomyelitis/chronic fatigue syndrome, with three proposed inclusion terms...

This post has been copied and following posts copied or moved from the NICE guideline publication thread here Diane O'Leary is still at it: Meanwhile, NCHS has proposals for returning Chronic fatigue syndrome to the ICD-10-CM G93.3 location under proposed new sub-code: G93.32 Myalgic...

CS has stated publicly that ME Association have this on their "to do" list but I don't know about other orgs.