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Wow. That's quite a list.

Good idea!

YouTube is big on copyright now. It's almost certainly that.

Thank you. It just wasn't clear to me what those numbers were showing, until you explained it. I didn't assume it was a smoking gun, but they did look weird. So it's the increase caused by a switch from bimodel to Likert scoring. Thanks. That's helpful.

These numbers are confusing me: What are they? This is where it looks like APT and SMC look better on something.

So I may be foggy, but APT and SMT seem to have better improvement/recovery rates at the bottom than the other arms (check the percentages given)?

Can someone explain the improvements to me? On the third tab.

Yes, but (CNS) glial cells have been identified as a possible thing in fibro too. So it might be possible that if CNS glial cells are involved, so are those in the periphery?

Ah, my mistake. I missed the division and didn't realise the numbers didn't all run 0-1. Is the first score up to 3? And another looks like it tops out at 0.8? I can't read it too well. The others look like they're still 0-1. So it looks like you can safely ignore me. But couldn't the...

ETA: This is wrong, so don't waste spoons reading it. (Moved this upfront as a civil service. ;)) Also, the numbers are multiplied together not averaged, so you'll always end up with a low number and this may exaggerate the effect of delayed testing. Let's say you score almost full function...

Interesting. Looks like they're already looking at this for chronic pain. I wonder whether it fits with existing theories of central sensitisation or whether it will now replace those theories with something else?

I've seen the video of children fed this in Africa screaming. It's horrifying.

Good to know. It's scary to think people take this stuff!

As I understand it, WF10 is delivered by specialists via IV and not orally at home or by quacks. Either way, this should not be experimentally taken by patients.

Was it the ME Trust, by any chance? They deal with severe patients and worked with Jessica B (The Girl Behind Dark Glasses). It's possible, as you say, that the physio doesn't see it as GET. Maybe discuss it with them? If the exercises are making you worse and you can't find a baseline, tell...

IMO, most won't want to diagnose or give medical advice. You might want to hire someone separately to do the analysis, although you can work it out yourself. The slideshow by Stevens upthread helps you figure out severity from VO2max alone and a drop in any one score might give you a clue where...

It's also possible the journal insisted on this wording. The MEA, at least, uses ME/CFS quite consistently, except where quoting NICE guidelines.

Fanning oneself can cause hundreds of 'steps' to materialise out of nowhere too. The counters may not accurately measure steps but they might be considered a loose measure of 'activity' (or at least movement) instead. Comparing patients with each other is probably less useful than comparing...

I think studies that measure step counts usually show that there's a wide range of activity with ME patients. Some are under- or over-active (as in over 10K steps per day), some are in the middle, but these figures are largely consistent (i.e., there isn't evidence of boom and bust). I think...

Does anyone have a copy of the GWI Symptoms Assessment Tool?