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https://journals.sagepub.com/doi/10.1177/1352458520941481 The problems of inaccurate terminology The much-identified impasse in defining daily onset MS-related tiredness appears—in the absence of an accurate label—to derive from the appropriation of the inaccurate nomenclature “fatigue.” In...

A couple of experiences with Meniston. Scroll down:

Yes, exactly what my dear friend endured from day one of illness and for the next 18 years. He told me he felt 'poisoned'.

Could PG be held accountable in some way from the harm he is promoting on social media? Just recently the Ontario's College of Physicians and Surgeons temporarily suspended a physician whose social media comments promoting misinformation during the pandemic landed him before a disciplinary...

He is literally promoting life changing harm with his beliefs.

And yet when you Google PEM all that comes up is ME/CFS.

Abstract The altered magnesium status in inflammatory bowel disease (IBD) patients may have a significant clinical imprint considering its role in cell signaling and genomic stability, as well as its involvement in IBD patients’ fatigue. Our study pioneers the investigation of magnesium hair...

No, my ability to fall asleep had switched off overnight like someone had flipped a switch. I had been sleeping like a baby with uninterrupted sleep for years before that. After 3 days from not sleeping I felt like was going to have a seizure so my doctor rx'd me trazodone. I went to...

Resting can make some people feel fairly normal when they're recovering from PVF. That was my experience. I rested for 5 1/2 years and never experienced PEM. I made one mistake by working out on my stair master and couldn't walk for 6 months. I told myself that I better not exercise...

Vestibular disturbances: https://pubmed.ncbi.nlm.nih.gov/29562557/ Interpretation: The major findings are that poor balance may be associated with poorer self-reported physical health. In addition, CFS patients seemed to rely preferentially on visual inputs, regardless of whether it was...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6589349/ These differences in sleep architectures indicate that patients with CFS+FM exhibit an additional sleep-disrupting component to their disease not found in CFS only, supporting the idea that pathophysiological differences exist between CFS...

Moved post https://www.frontiersin.org/articles/10.3389/fneur.2022.872734/full?utm_source=S-TWT&utm_medium=SNET&utm_campaign=ECO_FNEUR_XXXXXXXX_auto-dlvri

"Robson said other post-viral syndromes like myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can be instructive in what living, working and seeking supports is currently like and can be improved". “It seems to be that same biological connection to a viral infection and similar...

https://www.theglobeandmail.com/canada/article-long-covid-health-care-racial-bias-diversity/ "By the time of the heart checkup, several doctors had dismissed her concerns as being “all in her head.” It felt validating to hear someone acknowledge something was wrong. But that feeling was...

Very well done!

Abstract There is general agreement that optimal vitamin D status is necessary for bones, muscles, and general health, particularly in older adults, who are at higher risk of negative consequences of vitamin D deficiency, including sarcopenia; vitamin D supplementation is proposed as a...

Interesting. Update Psoriasis, which affects 2 to 3 percent of the global population, is an inflammatory skin disease marked by red, scaly patches that itch or burn. Low levels of cyclic AMP — a chemical messenger key to cellular communication — haven’t been found to cause the disease...

Merged thread - published paper Elevated ATG13 in serum of pwME stimulates oxidative stress response in microglial cells via activation of receptor for advanced glycation end products(RAGE), 2022, GunnarGottschalk et al Abstract Myalgic Encephalomyelitis, also known as Chronic Fatigue...

This was my experience too, I had hypersomnia in the first 9 years of M.E. I woke up feeling refreshed, but still needed to nap soon after I ate breakfast, after lunch and then fall asleep early in the evening. When severe insomnia hit 10 years later (lasted 2 years), I longed for the...

Many pwME experience vertigo/vestibular disturbances and vertigo migraine that might be an indication of mg deficiencies.