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Table 3 Experiences: Respiratory % differences is interesting. Many pwLC have breathing issues and low oxygen- silent hypoxia- damages vital organs. Recovery: Sleep doesn't ameliorate PEM.

After long-COVID-derailed career, Brandon Sutter has hope he could play again “I’m able to work out again, and just do everyday things. ... I’ve been skating a couple days a week with the (Red Deer) Rebels. ... I can’t quite do the things I want to do, I can’t quite push it to a level I need...

“People who have a more severe COVID case may have residual organ damage from their acute infection," said Dr. Alice Perlowski, an L.A. cardiologist who has long COVID. "But, even people with mild COVID infections can develop organ damage during the course of their long COVID.”...

Background: Scientific findings have shown that Epstein-Barr virus (EBV) plays a key role in the development of some tumor diseases. Therefore, this study intends to take a practical step in controlling the pathogenicity of this virus by designing an effective vaccine based on the virus Capsid...

Based on the table, it appears that PEM onset and recovery is quite a bit different when comparing LC with M.E? Could this be b/c LC pts might still be dealing with the viral load?

Hypersomnia for me the first 11 years and then insomnia for the next 2 years. Now sometimes I'm not sure if I slept but remember dreams so I must have slept.

Moved post Thread:

Yikes, on her (Delores)profile bio it says, "I am here to promote Long Covid Purity - if you are a filthy Mudblood from another virus we don’t want you - that means you CFS and POTS", and yet she's following ME/CFS researchers and pwME? Is this sarcasm?

I went to the ER in the early 90s for vertigo just after I was dx with CFS, the ER doctor's first words were "well, you don't want that". What does that even mean?

My sleep study report from the hospital wasn't even sent to my doctor.

I don't think anyone at the ER here would pay too much attention to this tbh.

https://batemanhornecenter.org/wp-content/uploads/filebase/education/top_resources/ER-and-Urgent-Care-Considerations-for-MECFS-1.19.22-005.pdf?fbclid=IwAR1CfyyBuZiDN62pYEOOB4JT_Y_cmC-eeIOoefObXwHRDsGT6w5Kl6oH7q

@JemPD By SB, which is an adaptive response, are you saying that you feel as though you're fighting an infection during PEM? My delayed PEM starts when I've gone over my energy limit. It's worse if I'm dealing with an infection of course, but it's tricky to fully know whether my...

Abstract Orthostatic intolerance and other autonomic dysfunction syndromes are emerging as distinct symptom clusters in Long Covid. Often accompanying these are common, multi-system constitutional features such as fatigue, malaise and skin rashes which can signify generalised immune...

I got Covid or influenza last December. Symptoms involved sore throat, coughing, loss of appetite, no fever for 5 days. I experienced on and off leg muscle fatigue for a little over a week. I went back to baseline 3 weeks later and thought I had recovered, but when I went for my usual 50...

Recurrent Acute Disseminated Encephalomyelitis (ADEM) after Covid-19-vaccination and after subsequent Covid-19-infection. A case report: https://www.frontiersin.org/articles/10.3389/fneur.2023.1149612/full

100% agree!

"The funding, from the Canadian Institutes of Health Research, will allow Cheung to work with about 300 researchers, clinicians and people with long COVID to develop diagnostics, treatments and rehabilitation"...

Please share the treatments pwME are receiving besides sleep meds.