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  1. Ash

    Crowdfunded awareness campaigns including billboards

    They are but mostly just for perfume advertising at Christmas.
  2. Ash

    Crowdfunded awareness campaigns including billboards

    If I understood your question correctly, and this is about the bill boards still, I don’t know what the groups funding these specifically want to achieve with this advertising campaign. So I can’t give a specific answer as they might want something I don’t know about. I assume that they want to...
  3. Ash

    Crowdfunded awareness campaigns including billboards

    I think patients are more than welcome to do whatever advocacy they want and how they want. But the bigger the group and the more people/money is involved the more responsibility to make sure that they are being properly strategic. Also not having negative effects on other communities or patient...
  4. Ash

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    It can be very hard, harmed lied about, harmed stone walled, harmed lied to, and on and on. This show of international solidarity means so much. Thank you to all of you out there!
  5. Ash

    Crowdfunded awareness campaigns including billboards

    I think it’s dangerous to raise awareness if you’re not going to direct that awareness in a constructive direction.
  6. Ash

    Polybio Fall 2023 Symposium

    Thank you @SNT Gatchaman
  7. Ash

    Neuroinflammation in post-acute sequelae of COVID-19 (PASC) as assessed by [11C]PBR28 PET correlates with vascular disease measures, 2023, VanElzakker

    Yeah I most of the time I don’t know about studies till they’re finished or abandoned! Also I do hear about interesting studies that aren’t in my country or area. I bet there are many people close enough who would also really like to participate but don’t even hear about it. We really need a...
  8. Ash

    Neurologic Effects of SARS-CoV-2 Transmitted among Dogs, 2023, Kim et al

    Yeah…It’s exhausting isn’t @rvallee? Although, I don’t think it’s human nature so much as the nature of a certain specific type of human. Those that through violence of one variety or another other, have got to the top. A few who now subject the rest of us to the physical fall out of their...
  9. Ash

    Inosine Pranobex: A Key Player in the Game Against a Wide Range of Viral Infections and Non-Infectious Diseases, 2019, Jiri Sliva et al

    Oh wow was not expecting that @Mij! Had just been thinking where can I get some. Perhaps a little more caution is required. How long did it take you to recover from taking this drug?
  10. Ash

    Dr Byron Hyde - Canada

    Yeah, I don’t think anyone even in that crew was saying having ME was like having Polio. I do think the hypothesis was surrounded by eugenicist anti-vax ideology, like okay Polio vax stopped Polio proper, but it weakened the population and now we are all feeble and ME ridden.
  11. Ash

    Feeling insecure about romantic relationships

    In terms of meeting a romantic partner and starting a relationship that could spontaneously happen any day depending on who you meet their interest and your receptivity. Maybe you have a particular person in mind and as I write this have already begun a relationship. Learning how to have good...
  12. Ash

    Trial Report Investigating causal links between chronic physical illness and major depressive disorder and anxiety disorders in youth, 2023, Shakeshaft

    I couldn’t agree more with all above. Context and process. In the following sentence you explain it exactly- the questions overlap deliberately to conflate many chronic illnesses as mental illness using correlations and arguing them to be causative It wouldn’t be possible to pass this-brazenly...
  13. Ash

    Responsible ME/CFS journalism - how to report on treatments?

    I don’t think the problem is people being gullible. I think the problem is a lack of decent information and a paucity of solid options plus huge social condemnation of people not trying hard enough to get well, not willing to try anything to recover. So on the one side you have pressure to...
  14. Ash

    Endothelial dysfunction in ME/CFS patients, 2023, Sandvik, Mella, Fluge et al

    I was thinking about what JE says here re his observations regarding movement abnormalities in clinical practice with various different patient groups. How spending voluntary working time with ME patients well enough to attend events away from home, but not without physical toll, gave the chance...
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