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Yes we need this maybe group effort?

:emoji_fire:

I had several rounds weak positive ANA. Told no Lupus due to the ‘weak’ part. I have little idea what it meant re lupus. I had various suspicions due to butterfly rash etc but nothing certain. However given my symptoms had triggered these particular tests, that they do not seem keen to do...

It is my reasonable expectation that the Royal College of Physicians will come to regret inviting Phil Lightening Process Parker to join the feast. Having said that. Maybe they feared he could ‘step into’ their bodies if he wanted to, that he might be more likely to do so if they didn’t give...

FATIGUE

That picture….

Yeah absolutely.

The crux. All the pain put upon us. All the “misunderstanding”. All the killing.

Makes clear the necessity of joint action. Essential to form a unified movement of ALL the ill ones. Why I believe we should (almost) never compare our illness to that of others in a covetous way. Where treatment of another illness is presumed good at least in comparison. This...

Yes absolutely. ‘made primarily on social media’ contains implied criticism of the method of communication used by patients advocates & others. Certainly a criticism of patients who did not write to MEA directly in addition to making their pain known publicly. Possibly a criticism of all...

I eagerly await the responses to this. For my reference folder!

Absolutely. A lack of transparency A lack of accountability A lack of responsibility A lack of strategy A lack of communication

I don’t know if wilful either just a possibility. They lack knowledge of course but something has provoked them to decide to take action anyway. Something that is not just their own not knowing. So perhaps an expectation of praise and reward if they go right ahead with application of their...

Except not “blindly” (wilfully?) as well as ableism this would convey unavoidable lack of some knowledge input. It’s not unavoidable though is it?

Umm. I would like John to give me my vaccinations please.

:thumbup: Hey Mike, Always love to hear about your adventures. A bright spot in the gloom. I know it is super hard work for you and it means everything. Thanks so much. Best wishes mate x

Yes indeed. I know there has been much speculation about about PH’s behaviours. A professional troll or terrifically ignorant? On the off chance or perhaps hope of the latter, the last two decades people have been very publicly endeavouring to explain some stuff to him. So with that in mind...

I don’t know. I came to a rather different conclusion. I clicked on this thread, My curiosity all aroused. One thought in my head. My Fibromyalgia is in need. What is a ‘Soother’ and where can I buy one? Followed by some practical consideration. Will I need a ‘Splitter’ and a ‘Lumper’ to...