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This is an excellent list. Also thanks for the thread here. I wonder if it’s internal limit implementation, for survival and or to maintain function. Consciously or unconsciously maintaining distance from internal boundaries. Getting close to these a sign of having stretched too far. A...

So scary for me and the human race so long as mass infection is the order of the day. :cry:

:arghh:

Yes… :unsure:

Good.

Good points. There was a temporary point where not endangering others was considered important by society at large. But now all the material support that would allow this, time off work, sick pay etc has been withdrawn. So now people will spread a deadly virus if it means they can get paid not...

I know in every cell of my body that pathogens are driving the pathological processes of my illness. I don’t know if this happens in addition to other processes that would have caused permanent damage regardless, in combination or separately causing accumulated impairments. So I agree with these...

Maybe they’ve marked S4ME as spam and the block is on.

Probably for the best.

Cochrane owes us so great a dept already, that it hardly seems worth mentioning it, but nonetheless mention it I shall. What could possibly excuse such institutional impoliteness, as a failure to send a ‘thank you for your complaint. We will endeavour to respond in full within the next two...

One thing that makes me really sad every time, is when I imagine doing rehab and getting stronger and stronger. Because next moment I will realise that I’m in my daily day dream and that actually in the physical realm I can’t get out bed for longer than the time it takes me to have a pee and not...

:sick:

Excellent!

Yeah at this point it’s very rare for people to have no access to patient advocacy information at all so in theory we should be able to organise a full boycott of all BPS related research. An indefinite boycott. I’ve long thought this is the way forward to protect individual would be...

Okay well that’s certainly taken the edge off of my enthusiasm @ME/CFS Skeptic, but I can’t deny at this point I still want some.

I don’t think it’s a failure of logic on the part of patients. It might be a failure of diagnosis on part of clinicians it might be time or lucky coincidence that leads to recovery. Or social pressures that lead to perceived recovery or performance of recovery. Since it is said that these...

Umm me too @JemPD And all your points above. Have they not thought of these? I think they probably have, and there is some mysterious motivational factor to account for why they just decided to go ahead and attempt to profit from this -real but also not real- framework anyhow. A complete...

Yeah I don’t think it’s because that’s when the advertising standard agency’s might step in, or risk of legal liability increases, I think it’s more nuanced and complex than that. In fact it would be reductionist and dualistic thinking to suggest otherwise.

:party::party::party: Go @Mike Harley!!! A run in 30 countries what a triumph, I feel honoured to be amongst those you’ve dedicated yourself to advocating for in this awesome way. Thanks man :hug:

It is the responsibility of a human society to account for and accommodate human sickness. To understand that people with chronic illnesses and impairments must be included and supported by the rest of society. The trouble is capitalist societies are set up upon exploitation. They churn...