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Thank you for this @Hutan. When I see such comments on severely affected patients being shared in writing publicly by a publicly funded body, the publicly funded healthcare body, I am in two places at once. One. I feel sick. Two. I feel relief. Direct. Honest. Unabashed. Loud proud. Open...

Yes. Also if you have an established diagnosis and a significant degree of impairment, possibly getting progressively worse it can be terrifying to hear worst case outcomes are real and not actually terribly unlikely. Another difficulty is people with resources and sufficient care options...

I am sure that this is the truth. If there were solid evidence for these techniques it would not be necessary for our healthcare organisations and associated parties and other interested parties to make such liberal use of un-evidenced assertion or to rely with such regularity on elaborate...

Given that there is no such thing as “severe diagnosis of CFS” I don’t think they need worry that they would be troubled by such a phenomenon. However all the other groups identified for exclusion from their services, might be ever so slightly less impressed by the Clinic frontage than average...

To summarise, what do Long Covid Clinics offer? Treatment Biomedical- NO. Treatment Psychological-NO!!!* *Absolutely not. So more for your mildly affected patients who don’t need or want actual help? Or those super healers who can go from severe acute illness into a short period of slightly...

Absolutely. I vote we share your important analysis of this all over SM and at every occasion that a clinic wishes to bring up ‘positive feedback’.

Oh I actually do remember this! Thanks for the link. That reminds me some of the specific reasons I couldn’t get totally behind this. I actually like this old school infection stuff. Interactions of all the life inside us and unique patterns of this. However most of the time proponents of this...

I’ve not seen or read the thread you mention. I don’t think caution requires that AP has to have no data. If AP does have data, limitations on this are nonetheless not being made clear.

I understand that MVE is interested in the area of research, persistent infections of nerve fibres which is understudied. Currently relatively unpopular as a field. So perhaps finding someone to work with on this locally would be a challenge. AP has a very strong interest in this area too. So...

Yeah. We have to know don’t we? It will be inflicted upon us whether we recognise it or not. Too inefficient to try to address the consequences without examining the process. I find this reality deeply unpalatable. I am glad you have attained the detachment necessary for this purpose. Would...

A little bit off topic but @Andy how do you survive the discovery of all these monstrous doings? It is horrific. This one stimulated my gag reflex. The creep factor in these BPS ers going after patients who have falls. I want to break down every sentence of this piece and explain why it’s...

I’ve done some. I found it a satisfying superficial cognitive problem solving game. I was dealing with a high burden yet relatively peripheral life problem while engaging in sessions of ACT. It was a problem I had previously addressed only without giving the matter my full attention. And...

:skull: :emoji_performing_arts: I’m ducking and weaving. I’m twirling, I’m whirling. A puff of smoke, wave of my cloak. On my dust you all choke.

Examining each of these options carefully. One possibility exists as follows. 1-3 “Trigger” potential factors of 4 “Perpetuation” prime factor of Another 4.= Trigger + Perpetuation. As I explore with rigour these options my outlook becomes more “robust”. Leading me to speculate that...

Umm… They do like to say some things don’t they. Get some words in that paper.

A study still in progress?

I have only committed to a regular reading program of these study updates since this morning or perhaps yesterday I can’t remember. I shall be retiring early from this program. For personal reasons. I can be fairly confident that no matter the ailment or intervention the conclusion will without...

Yeah isn’t it? As you say doesn’t trouble them to ignore own findings. I dream of a career where I talk shit all day about people less fortunate and considerably sicker than myself. For the status and the salary.

Also if at all possible replace your GP with a less monstrous one?

I don’t understand any of this. It’s making me feel unwell looking at the words.