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I’ve just realised that not only are loads more people likely to develop ME after COVID and loads of people with ME gonna get Long COVID on top of ME. Loads and loads of people with one or both are gonna get it much more severe than they would have due to no medical care. This is so awful I...

My down turn happed after getting COVID that’s another possibility.

I watched a few minutes of one of the videos of him on this thread. I find him unwatchable and unlistenable to. I can’t put my finger on why I guess his salesman intonation is just not that good. But also he’s quite disturbing to me. I guess it’s the pyramid scheme danger vibe.

I do not begrudge this person. I feel solidarity with their suffering. It is the charity framework that I dislike. They because ‘not too needy’ white blonde beautiful well known would be the perfect candidate for success in this arena. But they still shouldn’t be subjected to it. They could and...

Like kitty says I love T-shirt material/jersey bedding unbleached 100% cotton. Feels comforting like nothing else. I would have some but I am an active sleeper and I get horribly tangled up my limbs get trapped. Cause of the stretch I guess. It is relatively heavy so can feel like too much...

Yes agree. I maybe aught to edit that point. As is it sounds like I don’t think he should ask for help. I think anyone can ask if they want to. But he shouldn’t have to and bet he would rather not. Still that his hugely rich friends have decided to do something for him must be a relief. Many...

I find this unutterably bleak. He stands a chance his influential friends will see him right. Most disabled people who end up having to beg for support by displaying their trauma and injuries and sickness to an often abusive public, don’t get it. It seems so close at hand that we all might...

I had a sateen cotton bed cover and pillow cases that were the softest I’ve ever used so I would recommend. But the ones I tried were super expensive from House of Fraser Hotel collection on a massive discount so could be just getting something really expensive works. This was a few years ago...

A good one! Thanks @Andy I needed that. Acknowledgment of environmental interactions with the human body. So rare these days.

Maybe focus get proactive. Decide not to reproduce a society based on racism and an economic model that drives people into poverty, homes “unfit for human habitation”, sickness and despair? Too late it’s already happened? Then give people good sound safe housing and enough money to live healthy...

:yuck:

“Stress has been demonstrated to be involved” Has it? What is “stress”? What is meant by “demonstrated”? How was this “demonstrated”? When was this “demonstrated”? By whom was this demonstrated”? Was replication “demonstrated”? What are the differences between findings of immunological...

Yeah. You have been very fortunate, I am sorry this winning streak has come to an end. My first encounter was alternative types quoting stuff from the 80’s in the 2000s. Louise ‘Cure your Cancer with your mind’ Hay, may have coined the variation. She certainly loved a blunt object metaphor and...

They do cause the problem, indeed they do. You lay out how they do this very starkly. Id add, I don’t think there is a reason to think that they actually think that they are solving it. We have what this researcher says about themselves, that a problem they were trying to address was doctors...

Young Researcher He says they were “young researchers”, which is what you might say if about to recant your previous ideology, or at the very least to tell an amusing anecdote about something you were wrong about. It really doesn’t work if you’re then gonna explain that as an elderly...

As someone with LC symptoms I find this absolutely terrifying. Also yeah how awful to be told it’s anxiety when actually it’s a repeated pattern of symptoms based on biological processes. We can all relate but in decades I have never had this sort of investigation nor have most of us so we...

Oh no. Miranda Hart usually incredibly kind hearted about people with CI. Maybe he conned her? I have to say, I have been recommended his treatment by a fair few people irl with ME or by their families.

:unsure: Oh no very sorry to hear that. Yeah that experience sounds about right. Hope you feel better soon :emoji_four_leaf_clover:

Thanks @Andy. I found this whole article so moving. “Moreover, the story of ME is an infinitely complex and multi-layered one. I tend to write about it a fair bit. But even I haven’t explored many aspects of this story nor its full history, or how it all intersects with the agendas of...

As far as I remember, they seem to generally or -always?- use “unexplained” at the “muscle and joint pain” bit. But not usually for the others. This is an illness of unknown aetiology, so either all main symptoms are unexplained or all are explained sufficiently -to be on the list without this...