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  1. Ash

    Editorial: Mind the gap: integrating physical and mental healthcare for children with functional symptoms 2019 Heyman

    It means recognising that almost every patient with a chronic health problem can be helped to optimise well-being and functioning with good communication and understanding of the impact of symptoms. I know your knee hurts Annabelle. Because I have a high level of professional understanding...
  2. Ash

    Review Immune Status of Individuals with Traumatic Spinal Cord Injury: A Systematic Review and Meta-Analysis, 2023, Valido et al.

    Could a less severe spinal injury that doesn’t cause paralysis cause some of the same problems, and is there overlap with disruption to immune function of the type that can occur with TBIs?
  3. Ash

    UK: Royal College of Paediatrics and Child Health: Perplexing Presentations (PP)/Fabricated or Induced Illness (FII) in children, 2021

    I’m also thinking for most people it’s distressing to witness an another person in pain and especially a child. The child may lose sleep from the pain and their parent too. So maybe they all go a touch insane. That’s reasonable. A family might appear to present themselves strangely after all...
  4. Ash

    New relapse of ME after 15 years

    How long did you have them for @jonathan_h?
  5. Ash

    New relapse of ME after 15 years

    Yes. No medicine. I have not told my Drs about this recently because they banned me from speaking to them about my long term health at all. Only allowing me to speak to them when I’d give up trying to talk about that and was telling them about all the acute urgent stuff that was going wrong...
  6. Ash

    UK: Royal College of Paediatrics and Child Health: Perplexing Presentations (PP)/Fabricated or Induced Illness (FII) in children, 2021

    Parents can and do abuse their children in strange and unusual ways. Still society hasn’t found good ways to support children who have certainly and demonstrably been abused by their relatives and caregivers. Children taken away from their parents are very often abused further in the state...
  7. Ash

    Monitoring Carotid Blood Flow Using In-Ear Wearable Device During Tilt-Table Testing, 2023, Hemantkumar Tripathi MD et al

    That’s so interesting @Mij I am about to have a tilt table test which I am dreading last one I had was a normal(ish?) result but I felt horrifically sick for a long time following it. Shame I couldn’t have got one of these to take in with me to check it out. I’d thought due to how I did have...
  8. Ash

    Closed UK: DecodeME updates, was recruitment thread.

    @Andy congratulations on your team project inspirational!
  9. Ash

    Late-Onset Pompe Disease with Normal Creatine Kinase Levels: The Importance of Rheumatological Suspicion 2023 Marotto et al

    Would that be a something maybe people with an ME diagnosis and compatibility of symptoms could fairly easily be checked for with the blood tests?
  10. Ash

    The Sick Times: A journalist-founded website chronicling the Long Covid crisis

    @dave30th interviewed Betsy Ladyzhets for his podcast a while back I recall.
  11. Ash

    The Sick Times: A journalist-founded website chronicling the Long Covid crisis

    Some good news phew thanks @SNT Gatchaman. Good shout @Hutan, we could really do with the help. Perhaps @dave30th may encourage them on Cochrane coverage also?!
  12. Ash

    Can’t Think, Can’t Remember: More Americans Say They’re in a Cognitive Fog

    I don’t think so @Creekside. Forgetfulness is normal most people aren’t especially worried by it. Forgot to buy milk oh well. Called someone the wrong name never mind. The dysfunction following Covid-19 infection can leave you unable to remember how to move your own arm, pronounce the numbers...
  13. Ash

    Can’t Think, Can’t Remember: More Americans Say They’re in a Cognitive Fog

    I’m not American but I’m with them.
  14. Ash

    Masking and performing or 'management strategies' in ME/CFS (and being in positions where required or led to do so)

    I forgot to add something that may or may not go without saying; Everyone performs that is part of existing. It’s a neutral. But having to perform wellness while you’re unwell in the face of a long term or life long illness is not part of routine performance levels. There are many reasons...
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