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That is really interesting that in your experience and observation in Italy there is a different perspective or type of approach to patients and people with our illness or similar symptoms. In my understanding humans are quick to anger when they fear something either physical or...

More incredibly upsetting and completely unsurprising news.

Yeah I think this paper is personally tailored and individualised for pre-chronic condition athletes like the both of you. You must be so relieved to be seen and heard. Believed and represented at long last. What good fortune this pandemic has produced increased scrutiny, without which your...

Probably because she looks too happy to really need one, don’t you know these days all the self-respecting disabled people are taking themselves off to Switzerland never to return. /s Or you know because since UK gov raised the pension age yet again, there is the little matter of totally...

Oh dear! Forgot to edit the template once again is it?

Me too @Ariel, and it was my GPs plural who told me not to do too much when I went to them not recovered at 3 and at 6 months they said I was at risk of “ME” -they used that term-and at around nine months told me I may already have it.

Yeah I think so too. I’ve experienced the effects of the raw pre-vax virus and the effects of the vaccine. The first got me close to hospitalised, blood O2 down. Couldn’t get breath in. The second worsened ME+LC for months and months each time. Devil and the deep blue sea. That’s why I’m in...

Thanks @SNT Gatchaman!

Umm. I wonder if it’s those spikes that are why I’ve had bad reactions with my vaccines ongoing….

could you explain what this means in very simple terms?

Denial, yeah okay. I mean it is a bit hard to accept that a few psycho/is all it takes to make sure a whole world of people have our lives totally destroyed. But what have we got to feel guilt about?

I’ve long wondered about exactly this too. But I didn’t have an arrow metaphor to divide up my groups so it took me ages every time I wanted to refer to it. I’ll save your post and save time next time! Most grateful. Yours a falling arrow.

It’s so patronising isn’t it? Is there one person alive who doesn’t instinctively and educationally know that movements of different variety’s at different speeds or intensities feel good and are necessary to living, its close to breathing. Unless you’re sick.

I’m so sorry this happened to you. That you now have such devastating consequences to deal with. I am sure that you weren’t able to give informed consent. Not in face of someone professional emphasising the danger of not following through with their protocol. I imagine very little information...

A good day is a low pain day. A communication day. A bath day. A real reading day. I read most days but only occasionally can I actually really do it. The best day is going outside. Not only because I absolutely have to. Just to be out there and take it all in. Being autonomous.

Thanks @mariovitali! I wasn’t able to read the paper at top of thread due to exhaustion and was trying to work out if it’s findings were promising or not from the comments section.

“daunting” Really? So not something most ordinary people can’t afford? Sick people well… Sick pay isn’t generous Social Security neither, almost impossible to access or meagre in the extreme or both. But I’m sure everyone is just feeling “daunted”. If the guy selling you this product say so...

I think the benefits of Cannabis are often hyped at a universal level. For all the usual reasons anything is. But at an individual level it can be miraculous. Cannabis has medicinal properties known since time began and we should all be given it if we want it for spirit, culture, medicine or...

can you translate for people who don’t speak lab?

Well done that’s great! It looks like you can download and print the form for yourself then post hard copy back . This is the only other option displayed next to filling it out online and submitting electronically. Maybe I missed something somewhere?