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There is a simple solution to this and if they aren’t allocated additional funding there will be a political reason.

I found that myself. I have very severe light and visual movement sensitivity. I found my old large screen phone really good for this. My normal size iPad was beautiful for films but too much for reading and scrolling. The good thing now is that screens have improved so much that if you buy...

Oh that’s a good tip @Trish. I think possibly for reasons of accessibility people with ME maybe do need all three.

I use only a phone in bed. First I gave up my laptop by not replacing a broken one. Then had just a phone, max size. Then an iPad plus the phone. Then iPad broke back to phone only, but now it’s an SE and too small a screen. Using this forum is virtually impossible for me on the cramped...

That’s sad. I wonder if the post is filled by someone also understanding of ME patients? We lose a generation but we don’t have successors do we?

Very interesting thanks!

This is really good!

I didn’t realise you’d had your diagnosis that long, for some reason, maybe because you managed to keep working, now I want to know everything about how you think the doctor/social attitudes have or haven’t changed? For me it’s been two mere decades, not working though so much more hostility on...

Oh dear.

Yeah.

I am guessing it’s everywhere to some extent. But it’s the uptight protestant Northern European countries that are the worst for this particular way that research from there/here has a stranglehold. I reckon possibly- I don’t actually know- in a Catholic country it would be more about accepting...

:rofl: Oh thank you. I was feeling truly overwhelmed at how difficult I was finding this to understand. I feel better now.

As @Hutan says you don’t know what the effect will be until you try, and by the time the extent of a negative reaction or outcome is determined it’s too late to reverse it. None of us knew that the negative effects warned about with ME would specifically come for us until they arrived with...

Thanks @duncan. I will try again with this!

Thanks @lunarainbows, that’s very helpful advice.

Oh thanks @duncan! You shook me. I thought you were saying the opposite. I’m particularly invested in this because I may have it, and as discussed elsewhere on Lyme&Co my chances of getting this investigated or confirmed are close to nil.

I am looking forward to when someone has the free time and energy, to contextualise and explaining this in the simplest of terms down here. @duncan does Lyme not cause arthritis then?

Hey @V.R.T. Sorry I don’t know anything about them. I do hope you find someone helpful soon. I wondered how these Drs made your short list?, and if it was from some ME related websites could you link, I have hit a dead end with my 3 local hospitals and I am having some cardiovascular and...

Was this reply meant for me? If so not at all! There is always hope. I Don’t say any of this out of despair. Only ambition. I think scientists in or from Europe and every other continent in the world, will make relevant discoveries to the pathologies and treatments of our diseases. I hope...

:rofl:They love to shovel the load onto the the back of this one little innocent bystander don’t they? :bag: