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:unsure:

I always feel really sad when I see a tales of a celebrity with a long term illness in anyway similar to ME or LC or Fibromyalgia or any condition circling the MUS drain. Having to explain or minimise or deny this in front of a massive, as we all well know a hostile audience, must be terrible...

Ps I do think that separation of people with certain LD s is part of a segregation history, visible disability separation from non-visible, also separate from non-disabled people. So would welcome a more mixed image picture for all easy read guides because featuring only similar images is a...

This looks interesting…

That great for the people who were identified as having this condition isn’t it, they otherwise would of languished until complications really escalated and probably even after that.

I understand I’m sure people are worried that we were associated with LD because LD is also a group disrespected by society. Also fatter people. The first thing to say would be that easy read guides usually have pictures of people with DS on them. So this will have been an automatic thing not...

I don’t think we need to throw fat people under the bus. It’s also not okay to refer to people with Down syndrome as unattractive. If we expect others to drop their own prejudices against us we probably aught to take a look at our own.

There is a public perception of people with LD that equates LD to the medical classification of old i**** m****. Or r***** or s*****. These eugenic ideals have gone nowhere. Overall I don’t think ‘intelligence’ is really concept that stands up to much scrutiny. I think how we use it now it...

Maybe they were hoping to avoid feedback? I don’t think they gave us enough time to complete this with our limitations individual and collective.

I often read the easy read guides and they often have pictures of people with visible LD.

Oh yes I agree sorry if I was misleading. I wrote from that angle because people seemed surprised and possibly upset to see pictures of people with LD in the easy read guide. And also to think there was some mistake over cognitive function. I did not mean to suggest the government would ever...

Yes. That is because there has been decades of advocacy by and on behalf of people with Learning Disabilities. This is a rare success story. Nothing good is ever offered up freely by the government so exclusion is the norm. Advocacy by Deaf signers and blind Braille readers hit constant...

Some people with Learning Disability/Difficulty’s do have M.E, themselves or in family so representation and access important. Some people with M.E have English as a lesser used language and might struggle to understand the language in default document. Some people have not been given access...

That a very good point. Thanks for pointing that out, impatiently waiting for some proof of something, that could be important to potential treatments, can mean over looking the mini advancements, for me at least. I have little faith in researchers generally (except decode) being able to get...

Yes sir obedience.

It’s so mild, that we like to call it a traumatic brain injury. TBIs, are a bit much, so instead we focus our attention on the word mild. Mildness, is a symptomless phenomenon. We know this from our expertise, our consensus if you like.

I feel like the trust gaining or demand is fundamental to why this approach is so dangerous. Imagine if they said to patients “look you’re a very naughty boy/girl” “reeducation or no dinner” straight up. They’d still be causing unimaginable suffering. They’d still be killing their patients. But...

Oh @jonathan_h thank you. I could never articulate that sense. I feel like a lurker of some infectious agent is likely. Microbial assistance is reasonable. But feel uncomfortable with this marketing approach.

Dare I hope?

I can never keep track of information, so I’m afraid I can’t help. So instead here to say thanks for doing this! Protecting children more important than anything ethically. Also I think is where the wrong full ideas take hold and it would be practical to weed out at this early stage. I am...