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All of it. Especially yes, it is the Drs job to consider and investigate their patients for Cancers and not the patients job to hand them this option. But I am quite sure many patients did gift wrap and deliver their diseases to their Dr and that that is the main reason that they were sent...

@Hoopoe wishing you a speedy and straightforward recovery :emoji_bouquet:

I’ve never managed to test positive on a rapid test, I think because you have to catch it early because I have ME the early phases leads to extreme exhaustion(similar to normal but more extreme) so I don’t think infection immediately, so do my tests till 2/3 days after this phase when more with...

It should be illegal.

This is a nightmare. Participation is gonna ruin the health physical, of any participants who are mod+ affected and not already on an up swing. It’s gonna ruin the mental health of anyone who does improve at the same time as participating leaving them potentially attributing this to the...

How awful, the big ME and LC orgs need to get a warning out on this one so good hearted people don’t fall into the trap of giving donations to a business enterprise disguised as scientific research and altruism.

When reading the wiki bit on this drug it says not safe for long term use because of decalcification of bones. How does this fit in for us, in layman’s terms? If anyone knows.

ME too. I am out of the loop for months at a time, or trying and failing to read and take in information. All the work people put in here collectively means whenever I want to check on something ME related there will be something here to start my learning with. Since I forget everything I’ve...

Is there anything we can do about ER failure and get our exercise tolerance back up if that’s a factor?

I did a detox once, I felt great after the first two weeks which were admittedly awful, it was a month long. I kept it up for another month or so after that because I felt so good. I remember that. But I’ve also never forgotten how much hard work it all was. You made me nostalgic but glad not to...

Re the above. In 2016 UN report into violation of disabled people’s rights by the UK Government, a coalition led by the Torys. So it is not surprising that UN disabled people’s group has said since the 2016 report finding gross abuses of disabled people’s human rights, causing massive...

I didn’t even know about these changes until stumble into this thread. I used to read disability newsletters and articles and posts but since LC I haven’t had the cognitive capacity to follow any of it. I can’t get in Twitter without an account and can’t face trying to make one. Previously I...

I think it is the exception that proves the rule in some respects. But I think there are other factors, I can’t do justice to right now, but would be like to return to. One comparison often made is between prostate and breast cancer. This is misleading as apples to oranges. An intimate internal...

I don’t know this, it’s a very uneducated guess on my part, but I think that the connection between EDS and ME maybe; One refusal to diagnose/investigate EDS leads to systemic symptoms being attributed to ME. Two the EDS all over body injuries places extra burden upon immune system around the...

A better understanding of the immuno-metabolic mechanism of the PVF in CCHF patients can identify therapeutic targets for better and faster recovery. Bring it on!

It’s so scary. More so because there seems little medical willingness to look into these problems and assess for them. Everywhere you look a disease affecting a greater proportion of female than male patients, is trivialisation and ignorance. Even measurable factors aren’t taken seriously...

:arghh:

I don’t know what ALP is really having only just been prompted to think about it. Why do Drs order tests for it generally?

Thanks @Hutan. I only read conclusion of above post. I hope these study results get out and patients start demanding genetic testing. I know there isn’t capacity but only way to increase it is like loud demand.

This government has never been opposed to spending money, sometimes trillions on their own and associates scams, with nothing to show for it but non-PPE PPE. But they do like to remove the means survival of those that they have already impoverished and marginalised. They do like to...