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Thanks very much Dave, excellent. 45 clinicians and scientists. It's disappointing that we haven't had the organisations who were associated with the IAG sign up to the campaign yet: MEAction, ME/CFS Australia and their subsidiaries, EMEA and some of its subsidiaries, IiME, IACFSME, along with...

Thanks @Nightsong. My apologies to Mark and Friso. I guess I knew about the review at some time. Given that this has been done, perhaps it isn't worth trying again. There might be some new points to make (e.g. changes in standards for review processes; MAGENTA) though

That's an interesting read @Nightsong. The Cochrane review was published in March 2017 and this rebuttal of it was received in May 2017 and published in June 2017. I haven't finished reading it, but it seems as though the Cochrane review was poorly done. I'm surprised that the rebuttal didn't...

On the issue about a possible controversial review on steroid injections for cesarean births - that was mentioned in a German article linked and translated upthread. I haven't found much about the issue online. Obviously we'd need to be sure about it.

I think that's terrific @Robert 1973 A few suggestions: I think the 'would not resolve all the ongoing questions' is the weaker part of the statement. A review might not resolve all the ongoing questions and yet be true and useful for clinical decision-making. Maybe, "Cochrane's...

A number of posts have been moved to a new thread: The infrastructure of science

But, it sounded as though the funding required for the central organisation was only 11 million something (US dollars?). Which is nothing, in terms of a global organisation with Cochrane's previous 'gold-standard' reputation raising that money from wealthy philanthropists. But, perhaps they had...

Great initiative @Robert 1973. There is a typo in the first line - abandoned (not sure if that wording is still in your question). The quote came from the current editor, Dr Karla Soares-Weiser, who presumably is completely on-board with the decision to now abandon the new review process...

Ah, that makes good sense. I was finding it hard to believe that the authors could get that wrong. I think they could have presented things better. I remain a bit concerned about the adjustments that were made. (Disclaimer: I didn't finish reading the paper before I had to stop last night.)...

There might be an error in Table 1: But, here's the top part of Table 1 5,642 is not 17.3% of 15,166. It's more like 37%. I don't know what else they could be reporting. 17.3% +82.7% = 100% If they can't get as something as basic as that right, it makes me wonder about all of the...

That's a really high lifetime prevalence, even at half the rate. I wonder how they determined lifetime prevalence. Sampling procedure: So, they asked 38633 veterans to report about their health with a $50 incentive for completion. The response rate was 39.5%. Within the veterans were...

Sick Times article Without clear clinical guidelines in México, people with Long COVID face gaslighting and erasure https://thesicktimes.org/2025/02/18/without-clear-clinical-guidelines-in-mexico-people-with-long-covid-face-gaslighting-and-erasure/ Key points you should know: Long COVID may...

The researchers screened 40 consecutive patients and only chose 10 for the study. It isn't all that clear why someone made the cut for the study. There's a lot of potential for bias there, and the researchers very easily could have included a requirement for the baseline to show low morning...

One trial has resulted in three papers. As well as this paper, there is: the main paper, which found a null result: Specialist physiotherapy for functional motor disorder in England and Scotland (Physio4FMD):... 2024 Nielsen, Stone, Carson, Edwards et al an analysis of factors that predict...

34. Sharpe M. Cognitive behavior therapy for chronic fatigue syndrome: efficacy and implications. Am J Med. 1998;105(3, Supplement 1):104S–109S. That's a strange conclusion - the authors seem to think that CBT aims to have people decreasing their energy expenditure and reducing fatigue. I'm...

Sonja Rutten, Abigail Bradley-Westguard, Timothy R. Nicholson & Susannah Pick First author is from the Department of Psychiatry, Amsterdam University Medical Center, Amsterdam, the Netherlands Other authors are from the Institute of Psychiatry, Psychology & Neuroscience, King’s College...

It feels as though there is a systematic approach to propping up the FND paradigm, to countering the objections. 'What shall we do about those people bleating on about objective outcomes?' 'Make a paper showing that it's not just us that favour patient reported outcomes, but also patients and...

Thanks @Chris Ponting. So 'being male' was an input in your severity prediction model; and 'being male' tended to predict reporting severity as greater than mild? It looks as though, if you took the top ten factors to predict severity being worse than mild in the DecodeME sample, being male is...

Google said The Multidimensional Chronic Asthenia Scale (MCAS) is a self-reported questionnaire designed to measure health-related quality of life in individuals experiencing chronic asthenia, a condition characterized by persistent fatigue and weakness, often associated with chronic fatigue...

Just noting that the participants were 8 people with ME/CFS and 3 health practitioners. So, some or all of that may have been coming from the 'health practitioners' (whatever they are, presumably part of a multidisciplinary team, or happy to offload their difficult patients to such a team)...