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That's a useful summary. To some extent, we don't have to know for sure what went on in Maeve's case. If there is clinical guidance that is likely to be interpreted as making various forms of assisted nutrition off limits for people assessed by the treating clinicians as having 'functional...

Just on the 'trial report' prefix, a response from the moderation team: The trial report prefix is used for interventional studies, so, where a treatment has been trialled. It is fine to have no prefix, plenty of papers don't need a prefix. We understand that there is a grey area, where the...

Thanks for your replies @Jonathan Edwards and your ongoing work. Just as a side point on sectioning and capacity for decision making (sorry, taking the thread further off-topic): Practice varies, I don't think it is a big deal for some doctors. Having spent a lot of the last year sitting with...

But it's not just a perception of voluntary action, illusory or not. I over did it for a couple of weeks a few weeks ago, summoning the power to do things while knowing it would probably cost me. My face broke out in a rash of sores. I've had cold sores constantly on my lips, in just the last...

A subconscious learnt avoidance of unpleasant outcomes does not seem to be a likely explanation for what I experience. It doesn't explain the variability, how one day walking up the couple of steps in the back garden is easy and how another, the power is just not there. I have not had my...

That's a bit of a depressing read. It sort of gets some things right, but not quite. As you would expect from a resource for endocrinologists, there is a big emphasis on issues to do with cortisol and the HPA axis. It would be possible to address the many issues in this resource, but it...

That's really helpful information @horton6. I'm sorry that you are having to face such a big challenge.

Thanks to George Monbiot for the article and to those who continue to help inform him. I have already used the article in advocacy. I'm coming late to today's discussion and have only read the posts quickly. I'm sorry if I have misunderstood the arguments made, I'm left a bit confused. I feel...

It has been suggested that the tricyclic clomipramine is useful for treating hyperacusis. Has anyone else noticed tricyclics affecting sensitivity to sound (or other sensitivities)? Has anyone experience specifically with clomipramine? @wastwater posted a link to an article about clomipramine...

@forestglip has made a thread to discuss the presence or absence of fevers in ME/CFS here: Lack of fever during acute infections

Quoting two posts relevant to this:

I've just read this latest blog. It's very well done. The quality of your work (you write them in a partnership I think?) is very good, better than most papers we see.

I think your blogs deserve to be published, and I think they would be most useful published, as then they would be better able to be cited and would get a higher profile. Maybe you could join Jonathan in Qeios?

Thank you hotblack, that is what I am looking for. I'm sorry that you have those persisting joint/muscle/tendon problems. Please tell us more that you think might help people to know if you feel inclined. I found this resource...

Does the 'malaise' relate to pain here? Because I thought malaise was a more general term, covering a feeling of being unwell. If malaise relates to the combination of nausea, OI and pain, I'm not sure that that is right either. Nausea isn't a big feature of my illness, even when in PEM. That...

Thanks for explaining that, chillier.

Posts arising from the discussion about the Learn About ME webinar have been moved to United Kingdom: Learn about ME - webinar for GPs

I'm interested to know what people with severe (and very severe) ME/CFS and their carers have found useful with respect to preventing negative physical consequences of prolonged immobility. Some of the negative physical consequences I am thinking of, other than deconditioning/muscle wasting...

Thanks AliceLily. I agree that we don't want a troupe of people lining up to provide their professional expertise regardless of whether it is wanted or needed. A core team could be just a consultant and a specialist nurse. It's just that I want a person with ME/CFS who is having a really hard...

I'd add something like 'of the two components contributing to the acronym' to the end of the first sentence. It's just, for readers who don't think about ME/CFS and ME and CFS every day, it might not be immediately clear what the 'neither' refers to. Noting that there are two components helps...