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  1. Sean

    CBT for ME that is accepted by the community.

    Or just get a friendly [insert pet of choice here], and skip the whole seeing a psych step.
  2. Sean

    USA - Mayo clinic

    That would be the deconditioning that they still have not established the existence of. "may" By which they mean 'we have no idea'.
  3. Sean

    Recruiting Adolescents With [CFS/ME] to Internet-Delivered Therapy: Internal Pilot Within a Randomized Controlled Trial, 2020, Knoop, Crawley et al

    Yep. It isn't just the researchers who carry the blame, it is the whole system that supports them. The researchers could not have got so far on their own. They needed substantial sustained material and political support and protection. And they have had it for 30 years. Not to mention patients'...
  4. Sean

    Severe clinical outcomes of COVID-19 associated with proton pump inhibitors: a nationwide cohort study with propensity score matching, 2020, Lee et al

    Same story here. Only take enough to just control it (10mg Losec daily). Plus keep a bottle of Gaviscon handy for the occasional small top-up (maybe once every day or two). Totally worth it. Persistent serious acid reflux is very not fun. :dead::dead::dead:
  5. Sean

    CBT for ME that is accepted by the community.

    Which was when their spin changed from 'patients are anti-psych', to 'a small hardcore militant group of anti-psych patients and hangers on (possibly violent) are preventing the vast majority of nice good patients from getting treatment'. And what @strategist & @Kitty said.
  6. Sean

    Severe clinical outcomes of COVID-19 associated with proton pump inhibitors: a nationwide cohort study with propensity score matching, 2020, Lee et al

    Relevant to me, as a long term user of PPIs. Yet another reason to avoid getting COVID-19 in the first place. I'm guessing that should be 'susceptibility'.
  7. Sean

    BMJ Management of post-acute Covid-19 in primary care, 2020, Greenhalgh et al

    That is a critical qualifier. It makes it symptom driven, which is pacing not GET.
  8. Sean

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    IOW, a standard decay curve you would expect from no actual therapeutic effect and regression to the mean.
  9. Sean

    Accurate and Objective Determination of ME/CFS Disease Severity with a Wearable Sensor. Palombo et al. 2020

    But surely it would be too much of a burden for patients? :whistle:
  10. Sean

    Protocol ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19.

    That is the most important issue of all in this brutal farce: How have they have got away with it for so long, and indeed been lavishly rewarded for it? It shows beyond any doubt there has been a major, critical, and sustained failure of both technical and ethical standards in medicine...
  11. Sean

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Except for the exclusive reliance on subjective self-report without adequate blinding or objective measures thing. All this sort of paper demonstrates, yet again, is that they can induce changes in self-report scoring behaviour in some patients. They have yet to demonstrate that this...
  12. Sean

    News from The Netherlands

    :) :hug:
  13. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    "People are then plagued with ongoing exhaustion..." Exhaustion is a better word than 'fatigue'.
  14. Sean

    Preprint: Dental Care of the Homebound Patient with Myalgic Encephalomyelitis/cfs - Spivack July 2020

    Watch out for bruxism. It can do serious long term damage to your teeth.
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