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Paul Garner on long haul covid 19 - Don't try to dominate this virus, accommodate it This. We don't set the rules of engagement with this virus, it does. All we can do is learn them and stick to them.

1. The recovery journey takes a matter of months, or a year, or perhaps longer. How convenient.

This. It is a multi-axis assessment. Plus whether the testing is for harmless viral particles from a degraded and 'dead' virus, or potentially harmful viable whole virus.

Yep. It's going to be another disaster. :grumpy: The UK medical establishment have lost the plot on this stuff.

The Undead Rises. Again. :banghead:

For many young people with CFS/ME, recovery is not about a ‘going back’ to who they used to be, but a ‘going forwards’ to a new version of themselves whom has been through what is often reported as an enriching and developing experience, and who has progressed developmentally too What a bunch...

Or: That's better. And who knew severity of distress, and propensity to get depressed, would increase for people as the burden of physical symptoms increased? If they are looking for psychosocial factors, can I suggest that persisting in asserting psychosocial factors are primary when they...

Happening to me too. ME and getting old is not a good mix. :confused: :ill:

Do you mean 'discriminating' (being able to better judge) things?

Does that article discuss the long-term morbidity costs to individual survivors and broader society? Because they are the real problem with the 'natural' herd immunity approach, besides the length of time it would take to get there (without overwhelming the health system).

How does CCI fit with sudden onset ME?

I thought that until recently. But not so sure now. It's early days but ME does seem to be making a comeback, starting before COVID-19 hit, and accelerating after it. ME is being used ahead of CFS (i.e. ME/CFS), and even instead of it, more than I can ever remember it being. Problem with wins...

From Wikipedia: So, a single outdated outcome measure, of (as far as I can tell) the clinician's subjective assessment of the patient's status (not self-report by the patient), and – in this study – uncontrolled. Yep, the usual crap. :grumpy:

Not to mention projection all over the place.

Yeah, I don't think we are at the point where reliable distinctions can be drawn between ME, PVFS, CFS, Post-COVID, etc. Or even know if there are any. We just don't know.

Retrospective. :yawn::yawn::yawn:

Jeebus, do these clowns ever look in a mirror? All of the above could be fully explained by incompetence, dishonesty, and cowardice from the medical profession, and patients struggling to survive it all. Don't you just love how the crowd that go on and on and on about the importance of social...

Of course, there is no possibility that the endless stream of new names and concepts is just a rhetorical smokescreen to avoid having to admit they don't know what they are doing, and the serious harm this inflicts on patients. No sirree, couldn't possibly be that. :grumpy:

Outstanding content and clarity, @Michiel Tack. Thank you. :hug:

The conceptualization of fatigue from an understanding of sustained arousal has provided the framework applied in the overall CEBA project. Now there's a name I wish to never hear again. They have done terrible harm. :grumpy: