I fully expect exactly this sort of thing to be common, and that we are going to have to spend considerable time and energy policing and enforcing compliance.
They will not give up their gravy train so easily. They are going to try every trick they can to keep it rolling right along.
CBT for CFS encourages people to gradually build up and resume regular daily activities, to identify and plan how to deal with any triggers that might cause symptoms to get worse – to learn how to manage and reduce the symptoms.
The record's stuck...
The record's stuck...
The record's stuck...
Surely it would be odd if CFS was the only illness not helped in this way.
Even if that were true then it would seem like an important clue, not something to be waved away.
A very clear statement on patients having the absolute right to decline such programs, without that prejudicing their status in the health & welfare systems, is essential.
We are placed in an intolerable bind where we cannot give an answer that is both honest and safe. We have to choose. And even the 'safe' answers are still risky, because we had to lie, and one way or another that usually doesn't end well.
Try removing the Facebook tracker in the URL (everything from the '&' on, to the right). This bit:
?fbclid=IwAR2gMSsxeBum1oCubLjfvvhnM2CPmcULSl9uCsxuxZcpSeyFqEOry8mkjiM
We sure do. From where is the question.
Given we are at start of this process, what do you think are the minimal requirements of any plausible idea/hypothesis?
e.g. It must account for PEM.
In particular, we emphasize that successful rehabilitation from CFS/ME does not indicate that the illness is not real.
I note they use 'illness', not disease.
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