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  1. Sean

    ME/CFS services in the United Kingdom

    Rebranding Therapy is undoubtedly the most tested, successful, and career enhancing of all psycho-behavioural techniques. Lightning Therapy is a bumbling amateur in comparison.
  2. Sean

    ME/CFS services in the United Kingdom

    So the difference between the old regime and the new regime is...?
  3. Sean

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Beliefs and attitudes towards illness are important in many physical and mental conditions. Trudie Chalder Especially among those who claim to know how to treat them. Their beliefs and attitudes can do great harm. “Our researchers were involved in the landmark PACE trial, which showed that CBT...
  4. Sean

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Besides survival, the most important thing we had to do was get the physiology researchers interested.
  5. Sean

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I accept the need for compromise in order to get the worst stuff out of the guidelines, and generally get things moving in the right direction. But I don't like it one bit, particularly given how skewed the game was to start with. We still have a long way to go.
  6. Sean

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    I am skeptical that the situation can be changed much or quickly while the same senior personnel remain in charge of the clinics.
  7. Sean

    Australia: Active Health Clinic, Melbourne, Nathan Butler

    "...we are able to slowly and confidently build your capacity, without increasing your symptoms." Still a bold claim, unsupported by the evidence.
  8. Sean

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    None so blind as those who don't want to see. –––––– Oh the bitter irony.
  9. Sean

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I don't know, didn't check. But certainly it isn't there now. I took that quote from the letter to the BMJ by Dr Charles Shepherd, responding to Chalder. https://www.s4me.info/threads/uk-nice-2021-me-cfs-guideline-published-29th-october-post-publication-discussion.22996/page-20#post-387559...
  10. Sean

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    It does seem a bizarre hill to sacrifice credibility and careers on. So why? Under extraordinary political pressure to deliver a particular result? Reflexive circling of the institutional wagons? Fallen for cult thinking? Sheer incompetence? There are not many explanations that work here.
  11. Sean

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Totally. This is not a small isolated problem in one corner of medicine in the UK, affecting a relative few. It's implications go all the way to the core of medicine and the health system. This is systemic and sustained failure, in open defiance of all principles, evidence, and warnings. It is...
  12. Sean

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Good stuff, @Peter Trewhitt. :thumbup: Noted for future legal proceedings. Yes. :grumpy:
  13. Sean

    NHS England web pages on ME/CFS

    How would they know?
  14. Sean

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Translation: Oh no, they are on to us. :nailbiting: Exactly. They are being asked only to meet the same minimum technical and ethical standards as the rest of medicine and science are required to do. They are being singled out for hard technical and ethical criticism only because they...
  15. Sean

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Yeah, not making much sense to me either. :confused:
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