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  1. Sean

    Learning from long COVID: integrated care for multiple long-term conditions 2023 van der Feltz-Cornelis et al

    Long COVID is a multisystem condition requiring a range of medical, therapeutic, and psychological inputs. Such certainty. Why do I get a sinking feeling reading this?
  2. Sean

    Post-COVID—More than chronic fatigue? 2023 Ulf Seifart

    So, they are going to sacrifice the ME/CFS patients to the psychosomatic gods in the foolish hope it will save their PSS patients?
  3. Sean

    Persistent SOMAtic symptoms ACROSS diseases [SOMACROSS]—from risk factors to modification: scientific framework & overarching protocol, 2022

    Assuming that biological markers alone do not sufficiently explain aetiology and development of PSS, Hell of an assumption.
  4. Sean

    Long Covid in the media and social media 2023

    Look upon ye mighty works, O BPS Poo-Bahs,
  5. Sean

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    They used the 2003 and the London ME for the secondary criteria. They also modified at least the London, and I think the 2003 (IIRC) as well, thus making the results hard to compare to other studies that use the unmodified versions. Reeves WC, Lloyd A, Vernon SD, et al. The international...
  6. Sean

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Hard to avoid the suspicion that no matter what the evidence is from the study, Rosmalen is somehow going to twist it into a functional narrative, with causation assigned according to doctrine not evidence based logic. Time for a patient strike? We have the right to say no to being...
  7. Sean

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Correct. The double standard is appalling. Patients have a vested interest. Those who have committed their careers, reputations, status, empires, incomes, etc, to the psychosomatic interpretation have a conflict of interest. The one thing the BPS school cannot be described as at this point is...
  8. Sean

    No moderating impact of a medically unexplained etiology on the relationship between psychological profile and chronic pain, 2018, McNaughton et al

    'Medically unexplained' is a reasonable and neutral term, at face value. Problem is how it has been hijacked and perverted to mean 'medically unexplainable', that is by primary biological mechanisms.
  9. Sean

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    How to hijack the whole notion of biomedical and pervert it to whatever ends suits one's desires. All they are going to do is look for superficial, highly selective subjective correlates, and make sure none of it properly tests for causation, and claim that proves the psychosomatic...
  10. Sean

    Long Covid in the media and social media 2023

    committee members noted “concern” as patients reported being unable to receive a correct diagnosis or proper treatment. They are not getting 'proper treatment' because there isn't any yet.
  11. Sean

    Associations between daily routines and social support among women with chronic fatigue syndrome 2023 Rosenburg et al

    Large tracts of medicine seem to have abandoned the whole idea of causation, or at least robustly testing for it, and instead rely on association only. Typically weak spurious ambiguous association.
  12. Sean

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    Besides the differential in numbers and severity, and of course any generic gender-specific issues, all the descriptions of ME from females that I have read describe the same experience I have had. I don't see any other fundamental differences in the condition along gender lines. [Edited.]
  13. Sean

    ME researcher Jonas Bergquist - interviews, talks

    Yep, it is beyond ridiculous that some of the more plausible, obvious, and easily tested possibilities are either not tested properly, or just ignored completely.
  14. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    I happen to agree with the view that we should not conflate ME with the current definition of LC. That definition is too broad and non-specific, and we have seen some recent examples of how that will be misused against ME, and any connection with LC. What we should argue is that there is highly...
  15. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Follow-up article. https://www.abc.net.au/news/2023-04-25/long-covid-report-sparks-push-for-research-into-linked-illnesses/102262582
  16. Sean

    Socioeconomic determinants of ME/CFS in Norway: a registry study, Hilland and Anthun, 2023

    Does it also make any difference whether the Dr is male or female?
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