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I really want to see the hard evidence for that claim. :grumpy: Without doubt the single most important management tool we have at this point. To the extent ME can be managed, of course. (I would use the term activity instead of energy, but same thing otherwise.)

One could also imagine that he is being managed out, in a somewhat face-saving way.

This. The whole notion of a 'baseline' is seriously distorting understanding of ME.

True. But it can put an upper limit on the size of any placebo effect, including ruling it out completely if the placebo and no placebo no treatment arms have no significant difference.

mumblemumblehandwave*biopsychosocial*mumblehandwavecough

Good. But how many of those trials also had a no treatment, no placebo arm? ––––– Placebo effects are not nearly as powerful and long-lasting as the authors conclude. The placebo/nocebo effect has yet to be demonstrated to have sustained clinical significance.

If it doesn't work, and especially if it hurts you, then it is your fault.

They do the same with the no-nap advice for ME patients (coz 'sleep hygiene', apparently). But half the world naps. It is completely normal and non-pathological. This. Their whole act is built upon arbitrarily psycho-pathologising normal behaviour and responses, devoid of context and history...

BACME supports grading activity strategies when delivered by an ME/CFS specialist clinician to make increases and improvements in physical, cognitive and emotional function from an identified stable baseline. And the evidence for the efficacy of this approach is...? I mean, you guys have had 3...

That Ioannidis chap is proving a mixed bag.

The shameless grift continues on without restraint or care or accountability.

Straight fraud and cruelty. These people are a fucking disgrace. :mad::mad::mad:

If we ever get a clear biomarker profile for ME, I think it quite likely it will be a much more common problem than we currently believe. Good point.

Done. :thumbsup:

Our objective is to spread valuable information and provide key tools to improve human relationships and thus promote both individual and collective well-being. The Devil is in the details.

Should be banned outright. A core condition of formal peer-reviewed publication must be that the data is made permanently available to the public (with appropriate anonymity safeguards). The cost of doing so is trivial these days. No excuses. IIRC, PACE has a compulsory data retention period of...

Who wants to predict the findings of this study?

We must do something. This is something. Let's do this thing.

I hope you are right. I agree that we certainly have made major critical gains in recent years, and momentum is with us of late. But any celebration is a little premature. The BPS club is not going down without the most ferocious of fights to cling onto their ill-gotten power and glory and income.

physiosomatic symptoms (formerly named psychosomatic) So is this just a rebrand? Or is it a genuine attempt to move away from the psychogenic presumption?