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  1. Sean

    Bruce Wampold: How psychotherapy works / The dodo bird verdict

    he also states that RCTs are not helpful to generate evidence in the field of psychotherapy. Yes, all that rigour and falsification is bad for one's eminence.
  2. Sean

    Acquiring a new understanding of illness and agency: a narrative study of recovering from chronic fatigue syndrome 2023 Bakken, Strand et al

    Their obsession with spinning superficial narratives tell us far more about what is going on inside their heads than in patients' heads.
  3. Sean

    Norwegian journal for journalists covers the ME debate

    Exactly. Just more time wasting, obfuscation, and trying to delay the inevitable.
  4. Sean

    Altered brain connectivity in Long Covid during cognitive exertion: a pilot study, 2023, Barnden et al.

    This general angle has serious potential for LC/ME studies, and needs more consideration and investigation by researchers. I think most of the findings so far for both conditions are just the downstream consequences and compensatory physiological and behavioural responses, the attempts to deal...
  5. Sean

    Long Covid in the media and social media 2023

    Among them, thirst is a common complaint among long haulers. I get that sometimes. Used to a lot more before I figured out how to reduce the symptom load and PEM. I think you are correct, @RedFox , that it is not so commonly reported because it is easily dealt with and not really an issue...
  6. Sean

    Norwegian journal for journalists covers the ME debate

    With the usual honourable exceptions, the journalism profession has failed us almost as badly as the medical profession itself. Brave speakers of truth to power they most certainly have not been on this matter. They not only failed to expose these grotesque abuses of power, many were and still...
  7. Sean

    Elsevier journals: publication fees and access to paywalled articles

    Feeling the heat about their naked profiteering?
  8. Sean

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    That. Is. Not. Pacing. Incompetence, or brazen dishonesty? Coz they are the only options on the table now.
  9. Sean

    UK: Invest in ME Conference 2023

    The diverse, multifactorial and complex nature of ME/CFS When I hear those kind of statements I take it to mean that there is still too much focus on the broad downstream consequences of whatever is wrong. Not on locating the primary underlying mechanism driving all this. Cue suggestions of...
  10. Sean

    The NHS productivity puzzle: Why has hospital activity not increased in line with funding and staffing?, 2023, Freedman & Wolf

    The demand to account for every minute of every day, and every paper clip and pencil, is so counter-productive. It is managerialism and accountability taken to the point of self-destructive insanity. Apparently the concepts of diminishing return and workplace flexibility have really not been...
  11. Sean

    Limbic Perfusion Is Reduced in Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2021, Xia Li et al

    I am firmly of the view that pacing is an experienced based process. The basic concept can be explained (and even that is problematic). But the details have to be learned the hard way. Patients have to learn by doing. Anybody who claims to be able to teach it is kidding themselves, at best.
  12. Sean

    Dr Björn Bragée and the Bragée ME-center in Stockholm, Sweden

    In ME, the most common type of pain is neurological, widespread and general, known as nociplastic pain. Again with the utter certainty. :facepalm:
  13. Sean

    Who is Simon Wessely?

    Has Wessely ever refused an award?
  14. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It is almost parody, isn't it.
  15. Sean

    News from Australia

    Good Twitter thread. The core points are being made to the parliament. :thumbup:
  16. Sean

    News from Australia

  17. Sean

    Long Covid in the media and social media 2023

    If I didn't know this was describing LC, I would think it was describing ME, and quite accurately. It would not be possible to make a differential diagnosis based on this symptom list. Invoking Occam's Razor, by far the most plausible explanation for this is that they are the same thing, or at...
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