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Maybe even more badly after doing stuff you like because you want to keep doing it, and push further past where you should.

Both clinical factors and cognitive-behavioural factors have been suggested to play a role in the perpetuation of complaints. Decades on and they are still stuck at the suggested/possible/promising phase. And gotta love the passive 'have been suggested' framing. Yeah, by people like you...

That is the patient blaming excuse they are setting up for themselves when it doesn't work.

A blast from the past. I remember it well. Indeed. What would that look like? Answer: Exactly the situation we have now. I agree. Solving ME specifically is going to fundamentally change medicine more broadly.

Good stuff. :thumbup: We will win when we get enough clinicians and researchers like this taking up the fight we have had to carry for fifty years. They not only have more credibility and clout, and cannot be so easily dismissed, they also have the health and stamina to do it, and keep doing...

Be interesting to see how much difference it makes if the cause/s of PTSD/anxiety/etc are still active, as opposed to in the distant past.

By unraveling the causes of CFS, it becomes apparent that a multitude of factors,... contribute to its development. But we don't know the causes, hence we don't know if it is a "multitude of factors". Why can't they just say 'we don't know'? Why is that so terrifying to them? –––– I can't...

+1

The enemy of my enemy is not necessarily my friend. Though they may be a useful temporary ally.

Which is consistent with patients having a major undiagnosed physiopathology, that is instead being persistently misinterpreted and mismanaged as a psychopathology. Real mystery why patients might not be doing too well in that scenario, isn't it. Good question, with some disturbing implications.

>The concept of internal inconsistency in FCD is promising but requires refinement. It requires robust validation first. >Contemporary diagnostic criteria for FCD imply that neuropsychological testing is unnecessary because a diagnosis can be made on the basis of internal inconsistencies...

No control group. Dead before the starting gun is fired. Do they genuinely not understand that adequate control (of all the relevant significant variables) is how science is done?

In fairness, that "rigorously" is an important and welcome qualifier.

but we hypothesize it may be a physiologically adaptive mechanism designed to mitigate the physiological stress of hemodynamic challenge. The general concept of secondary adaptation and mitigation to underlying primary pathology has serious explanatory power for much of what we see in ME, both...

I have processed the audio to improve it. (Volume adjustments, light de-noising, light compression.) No edits or alteration to content. Let me know if there are any problems with it. https://www.dropbox.com/s/z106q4jylbhx0qy/Living with ME (audio, processed).mp3?dl=0

What else does it mean? This is just Orwellian games with words. That 'If' is doing a lot of hard lifting. Far more than is legit or safe. Nothing more. They have hogged the research funding for decades, and have completely failed to establish their case. They had more than their fair chance...

certain personality traits are assumed Says it all.

Multi-axis + non-linearity = :ill:

Extremely disturbing and blatant abuse of power. Just sickening how shameless and ruthless they are about it all. But, sadly, not surprising. :grumpy: Several patients got a reply that they are not a "belanghebbende", an interested party/concerned/stakeholder. If patients are not stakeholders...

Sure, that is one possible outcome. But we won't know if we don't look properly.