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Congratulations! You have just won this Sunday's Hedging Prize by qualifying the phrase "Peter Barry is listening" five times in one sentence.

Aye :emoji_hand_splayed:. Fabulous letter. With regards to evidence, from their statement here: https://www.actionforme.org.uk/news/pace-trial-and-behavioural-treatments-for-me/ So they claim that the therapies they recommend are evidence-based, but their only evidence seems to be "BACME...

Well I have now blasphemed openly so the atmosphere is decidedly frosty. I was half expecting to be purged, but they've just booked me again for the next semester. Must be less trouble than getting rid of me I suppose.

Looks like our positive couple gets around a bit: https://www.ignatianspirituality.com/24807/why-gratitude https://www.penderelstrust.org.uk/adviceEmployer.php Still, no need to use a picture of a real M.E. sufferer, it's not as if AfME actually know any.

I think it's marvellous, I feel encouraged and supported to leave my sofa and show the world that with the right help and support I really can go for a long walk. Thank you AfME. Apparently this is one of a series of events, here's the next one: This event fits in with AfME's current position...

I think I might have the same problem.

perpetuating factors—for practical management the most important factors are those that perpetuate the illness and consequently act as barriers to recovery, including the unmodifiable behaviour of Michael Sharpe and colleagues.

And another pic for the "typical ME sufferers in the media" album.

Here's a (rather long) interview of the authors of the hoax articles where they discuss the ethics of the hoax (apparently - haven't had time to watch it myself yet):

Maybe they should practise what they preach and make a small accomodation to support PwME by changing the timeout setting.

The pictures don't seem to fit the tone or subject of the article very well. 5 photographs (selfies - all labelled photo - Emma Owen) of her looking glamorous? Sipping a cocktail, in front of an expensive car, made up with a dog, on a balcony in an exotic location ...

The press is full of the benefits of fibre and wholemeal bread this morning, for example: https://www.bbc.com/news/health-46827426

The story continues ... https://www.wired.com/story/how-a-dollar40-million-nutrition-science-crusade-fell-apart/

This bit about cholesterol and eggs made me laugh: This has a very familiar ring to it, as does much else in the article.

AfME were present on this thread where I posted on 31st August 2018: https://www.s4me.info/threads/action-for-me-the-pace-trial-and-behavioural-treatments-for-m-e-position-statement.5532/page-6#post-100457 And I've posted directly to AfME here on other threads on the same point previous to...

Isn't that a charity run largely by women with a very good nose for PR? Valerie Eliot Smith should be careful what she wishes for.

By the way, I have improved over the last 5 years, so AfME should be listening to me. I've done it by not following their advice. I've done it by doing my best to create the conditions where improvement can occur if it's going to, which means cutting back all activity you can to baseline if...

No apologies necessary. But this: Describes me perfectly. It leaves out PEM and all the rest of it, but what is in that description applies to me. Their advice in the leaflet about pushing boundaries is totally inappropriate, it would lead to a deterioration to moderate or severe. I've tried...

I read that as "integrative medicine for the undeserved". I was probably still under the influence of reading What on earth is that about?